Celiac Disease is Serious - Real Stories from Real Patients

Beyond Celiac Ambassadors share the burden of celiac disease on their lives.

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[jackiejones]

I have been diagnosed nearly 20 years I hadn’t realised the on going problems I have are coeliac related! I thought being gluten free fixed it all.
Thyroid issues. Brain fog. Cramps. Tiredness ( so bad )
Emotional issues.
Thanks for posting this. My respect ❤

[jayndough]

It has completely turned my life upside down. I hate it, absolutely HATE it.

[planetsahil]

This is making me cry seeing there are thousands of people like me that have celiac disease

[Aussie.in.America]

I refuse to see myself as a victim or sit around and feel sorry for myself. There is so much good in life. Celiac’s disease is not going to stop me from having a good attitude.

[mollytheewok]

I was diagnosed over 4 years ago, and it's still hard, especially the social stuff. Also accidentally getting glutened sometimes, even though I am super strict and careful about avoiding cross contamination.

[richardbenson]

I've had it for 56 years, I'm really young at heart and am struggling with it more now than ever. I recently went to Hamburg with my children, I couldn't eat easily at all, it got me down so much it was untrue. People don't realise just how restricting it is.

[dianewilliams]

Diagnosed almost five years ago and, people, you can do this. Sure, there will be accidents, but clean them up and go on with life. So frustrating at times, especially as a single person, engaging in social events that are centered around food.

[yvonnepettersen]

I was diagnosed 6 years ago I can't go out for meals have to explain why I can't eat the same food as others get sick of it don't go out at all now either diarrhea or gut aches to some of the gluten free food tastes terrible better with an empty stomach hate the brain fog

[andrewmcwilliam]

Diagnosed 2 years ago. On Christmas vacation now for 3 weeks and recovering from being glutened 2 of those 3 weeks. Haven't willingly touched gluten since diagnosis but battle constantly with cross-contamination. Pisses me off no end.

[olivianigealabhain]

Love & respect from a fellow sufferer Here in Ireland ❤

[leannhorne]

What’s so upsetting to me is not one professional seems to know anything about it. Go to every source, even the ones who have far out ideas. Find truth on your own. Trust yourself, if feels like it has gluten. Believe your gut! Not the label & not other people.

[sophiasherin]

This helps a lot because I recently realized I need to get check out for celiac bc consuming it disables me. My family calls me delusional, insane, and they tell me that I shouldn’t believe everything I read on the internet lol.

[andylarsen]

I was recently diagnosed with this, I’ve struggled for years with the symptoms while not knowing what was going on, and it was frustrating. Watching this I was in tears, because I finally feel like I’m not alone and that there are other people that get it.

[bonniesmith]

I always knew something was wrong. For years I would complain to my doctors. After years of feeling like a crazy persons because the doctors kept saying its your age, your weight, I got a doctor that took a look at me and listened. He sent me in for tests. By then I was peeing blood and vomiting a few times a week. My heart was looked at, thought I had heart failure, did a kidney biopsy, found a kidney disease, sent me in for a upper/lower GI, found the celiac. Stopped eating gluten and a few weeks later my kidney numbers started looking better. Turns out it you have celiac you can develop another autoimmune disease. I have a permanent kidney disease now. Took 10 years to get my celiac diagnosis and I was happy I was not crazy, but I wish it would have not been celiac because its been hard.

[CC-sduj]

I HATE As a black woman its extremely rare to have this. Everything has gluten im very sad and its hurtful im tired of looking at every freaking ingredient, and i cant even kiss my kids after they've eaten gluten. I have no one that understands. Its very depressing and sometimes i have to force myself to eat due to lack of appetite, pain and just needing did this happen????😢 I need

[rschelowen]

I was diagnosed with celiac disease after having my first daughter and it's truly been a struggle. I also have diverticulitis and non diabetic hypoglycemia. Celiac also will cause depression from just being in physical pain all the time as well.

[Stickywicketkeet]

Sorry y’all
Just happy to finally have a diagnosis but I never let it stop me. Nothing will stop me:)
My mind is my own.

[Bearded_Viking]

This is so true. I feel like a burden often, often. I know i shouldn't, but i do. I'm struggling today because of something i ate. Even though I'm super conscious of what i put in my body.

[amazingamx]

It is soo tiring to have this and no one else takes my struggles seriously. Everyone says to just ignore gluten. Its not easy. Iv come to the point where I hate even eating food. I wish I could replace my intestines with a battery and plug myself in every night.

[nikkispradlin]

I was just diagnosed with celiac disease and have a tumor in my small intestines as well I been so horribly sick for so long and was misdiagnosed with so many things, I had my endoscopy friday by monday I got my results, I too feel this way alot of times and its terrible 😢I am praying for all of you facing this disease bc 7ts scary and it is a sad quality of life, I haven't worked in over 10yrs bc of this I'm stage 3 celiac complex disease:*(