My Life Expectancy

I talk about my life expectancy with cystic fibrosis.

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[mortmort]

She is dying yet her optimism and happiness and hope is higher than so many people... So much respect for her

[finnpeters]

If she ever does pass, I will be extremely sad because this girl is the epitome of braveness, positivity and maturity

[daphneakpotu]

she has such a beautiful spirit she has more life than most of us ungrateful teens bless her

[ameliemarjorie]

"So, I'm dying", *drinks tea*. That made me laugh so hard, which is funny because I am still utterly terrified to die. I'm almost 27 and the fact that I won't be alive one day to continue to see the beauty of this world. I'm trying through. I see it in a different light. Thanks for being you.

[MollyBurkeOfficial]

I was born with a progressive eye disease that slowly makes you go blind and just today I turned to my mom and said, "it's so weird knowing I have this disease living in my body that's slowly just destroying things" - when you live with it everyday, you just forget! This disease is my normal, I'm 23 and have been living with it my entire life. I've already lost the majority of my vision to the disease, but I could still lose the little I have left and I've just learned to accept it. It is what it is, can't change it, gotta accept it!

[bekind]

This really woke me up. And I'm very thankful. I'm a really paranoid, anxious, person. I get distressed over the smallest things. I go through times when I get so depressed about the state of our planet, my life and the mentalities of people who do bad things. I fear death, and so many other negative "what if"s that I'm barely holding on to my sanity at this point. This though...this outlook.. this is beautiful. This is what light and love looks like. This is hope. Thank you so much for making these videos.I'm so glad I found your channel and though I know you are used to your situation, I will add you to my prayers every night. You deserve every wonderful moment on this planet that you can get.

[lillithzazueta]

I love you wish you were my best friend

[neckemec]

oh my god, how much positive energy I can feel in you

[SimderZ]

Most people with cf die in their 20's sadly.. But a lot of cf folks pack a lot in. I have very severe crohns and colitis with other complications. Its very very exhausting to be ill all of the time and to know it will get worse. All the hospital trips, medication, surgery can really take a toll. Hugs to all those with chronic and terminal illness.

[lauren]

You are such an amazingly positive person and it is such an honor to even get to watch your videos. If anyone can AT LEAST kick CF's ass for another 5 years, it is you!

[omnombrains]

I just found your channel by accident ... You're so positive and I feel so bad that someone like you will be taken from this world sooner than you should... How do you stay so positive??? Jeez :(

[diamondheart]

My friend has Cystic Fybrosis, too. It hurts to think that she's could be dying

[jordanj]

so many comments asking "why do the good ones have to die young?"

well think of it like flowers. People pick the pretty fresh ones, not the old rotten ones.

[bellasander]

Why can't more people be as positive as her?!

[zuheirsublaban]

You are a true force of nature
Im a medical student
Im gonna work my ass off to try and fight this disease

[_JoyceArt]

I don't care how upbeat you seem. And I understand why you are, it still is bloody unfair that you and other young people have to go through this. In any illness.

[beaw]

You remind me that I don't have real problems. You know and accept that you're not going to be on Earth for as long as most, yet you're one of the most optimistic, most beautiful, hilarious people I've ever seen. Thank you for letting everyone realize that we should appreciate everything we have before it's taken from us...and reminding us to delete our search history in advance 😄❤️

[nicolekilgore]

She's soooo sweet and just have so much respect for her! I'm in a similar situation and I don't go but maybe one/two weeks before i'm in the hospital for about 10 days. I'm 24 yrs old and try to be positive but I just cant get ahold of myself. I would love to be half of the woman she is and hold that much joy and composure as she does! She's a huge inspiration. God bless her! <3

[lexim]

My grandma was born with CF and she had a life expectancy of 5 and she lived to 98

[i.snyckers]

My dad had 2 weeks to go through his search history before he passed, but he sadly didn't do us the favor. He also didn't get rid of the pillowcase full of sex toys that he kept in his van. Because of it we laughed SO MUCH at his funeral (and that might well have been his plan all along, who knows. haha)