What is Shane's life expectancy? [CC] / Squirmy and Grubs

Shane was born with Spinal Muscular Atrophy Type 2, a progressive disease that causes muscle deterioration and weakness. Today, we discuss his life expectancy and how a breakthrough treatment, Spinraza, has greatly changed his future.

Thank you SO much!

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PO Box 16411
Minneapolis, MN 55416

Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.

Hannah is a senior at Carleton College, studying sociology and anthropology. She works as a researcher for an educational consulting firm. Her future aspirations include attending law school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.

Shane and Hannah have been dating for over 2.5 years and living together in Minneapolis in recent months. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.

[NeoKirchBaby]

The sense of humour is everything on this channel lol

[twdjt]

“My life expectancy is directly related to the steepness of the ramp outside” 😂

[rosered]

My friend married someone she expected was going to die within a year. I think It's been over 23 years now...
Shane looks healthier the longer you guys are together!

[benjaminfloors]

She’s a nice girl who actually loves another human unconditionally. Very possible. And god bless.

[jayathome]

My friends dad with SMA is over 70. He is awesome, and an inventor, business owner, and a great guy!

[ireneburkeblaney]

Yo I take care of a person with SMA!!!! And they are So keep rocking!!!! Your gonna be around for a long while!!!!

[lauralangston]

I know this video is old, but I want to point out that Hannah's excellent and dedicated caregiving will also be a huge factor for Shane's life expectancy. As a hospice clinician, I see the affect good care and quality of life have on lifespan, and it shouldn't be underestimated!

[marilynthomas]

I’m glad that your life expectancy is now beyond 30. My Mom was told after my birth that I wouldn’t live to see 30; nor would I walk, talk, or feed myself. I absolutely love you guys. I think your sense of humor is awesome. 💞

[Zhark]

“My favorite attribute is her toes”
A man of culture I see

[syrtech]

Well.. Stephen Hawking’s life expectancy was 2 years after his was diagnosed... he lived to be 76, 55 years after being diagnosed... anything is possible with hope!

[jstringer]

You guys are changing the world with these posts. People are looking at folks with disabilities in a different light. Thank you.

[christenpatin]

I just love watching you guys. My nephew, Kaden, is 9..he has Congenital Muscular Dystrophy and I love him the same as I love my girls. I watch him struggle and this week was his hardest. I’m crying just typing this. Shane, seeing you with your positive and uplifting mindset just inspires me. I hope and pray that Kaden will be as strong and inspirational as you are. Hannah, you are an angel.

[kymberlyp]

I loved the “polite shade” to all those negative commenters that speak so harshly about why Hannah is with Shane. Great job to the both of you. 💚🌺💚

[lotushead_music]

I've learned that if you can't laugh at shit in life, you're going to have a bad time. Humor is everything. I really enjoy both of y'alls sense of humor.

[rosiederuntz]

He has the best personality. He should be a comedian, I’d pay to see that.

[MrBoxer]

I think his lifespan is much longer then most with this condition BECAUSE of the love they are sharing as it brings such joy to you heart and soul. Peace guys.

[paytonhope]

“Now I have to wait longer for the money” 😂😂😂 y’all are too much

[pimsvensson]

I never click faster on Youtube notifs except for when Shane and Hannah uploads something new

Edit- oh damn 360 people liked this?

[marlawise]

Your relationship is so beautiful and touches me deeply. My sweet baby Connor was typed between one and two when he was diagnosed with SMA. He passed away when he was 4 yrs 7 mnts old. His life expectancy was 2 yrs old. I see him when I look at you Shane, and it fills my heart with love. I am so grateful to watch you live a life filled with love, joy, and peace. It warms my heart knowing you ate do very loved by Hannah. You both...well, my heart is full. I wish I could find the words to express what I am feeling, but they're in the form of tears rolling down my cheeks just now. Your life is beautiful, Shane. You are so beautiful to this mama, who is missing her Connor
❤

[revengeoftheshamhammer]

“I thought it was 30?”
This made me shoot the water I was drinking out of my nose.