911. Temperature Sensitivity and Rare Neuroimmune Disorders

Krissy Dilger of SRNA was joined by Dr. Gretchen Hawley for an Ask the Expert podcast on "Temperature Sensitivity and Rare Neuroimmune Disorders." Dr. Gretchen began by explaining why people with rare neuroimmune disorders may experience heat and cold sensitivity. She discussed how temperature regulation plays a role and the effects it can cause on someone with a rare neuroimmune disorder. Finally, Dr. Gretchen provided various treatment options and coping mechanisms for temperature sensitivity.

[dustyfeller]

5:00 - 1/2 deg. chg in core temp, 10:00 dysreflexia, 16:20 in AC, but baro pressure outside is rising, still affects,

[readingswithkatie]

This is such helpful information, thank you for posting this.

[SatumainenOlento]

Excellent podcast! Absolutely must to listen to everybody with heat/cold intolerance! It explains all really well and helps much to deal with the symptoms.
Thank you so much!!!

[Shellyranae]

Great presentation! The only thing i wish she would have touched on was the pathophysiology of uhthoffs phenomenon. With an increased body temperature, nerve impulses are either blocked or slowed in a damaged nerve. Once the body temperature is normalized, signs and symptoms typically reverse

[zanetaz]

My 7 year old son has been suffering from ADEM for 2 years. If it's hot outside, it's hot, it's 26 degrees up, my son has a fever of 40 degrees. Only cold compresses from the freezer applied to the liver help. I react the same way to IVIG or steroids. Is there any cure for this? Antipyretics don't work, and my son also avoids the sun. He hides in the shade or in a house with air conditioning all summer and when he goes outside he immediately comes back with a fever and very bad mood