My Heart Is Outside My Chest | BORN DIFFERENT

A BRAVE girl born with a condition that means her heart developed outside of her chest has said she will not let her condition hold her back. Virsaviya Borun-Goncharova, 12, was born with an extremely rare condition called Pentalogy of Cantrell. It caused her rib cage and abdominal muscles to not form properly during her mother’s pregnancy. Now, she shares her condition, lifestyle and passions to her followers to show people that it hasn’t held her back and won’t stop her from pursuing her dreams. Virsaviya, said: “My condition is called Pentalogy of Cantrel, and it basically means that my heart is outside of my ribcage. So it's not protected by my rib cage anymore. I would like to push my limits on what I can and cannot do because I want to inspire other people. I want people to know that I am more than just my heart, I’m beautiful just the way I am. And so are you.”

Videographer: Carlos De Varona
Producers: Dan Coles & Kim Nguyen 
Editor: Ethan Edwards

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[RawringReagan]

You can tell her mom cares sooo much. The way she’s raised her. The way her daughter thinks. The room. She definetly is an amazing mother

[ourcorrectopinions]

This girl has incredible confidence and wisdom, not to mention aside from the dangers, it looks kinda cool. As long as she's careful, she should have a happy, awesome life.

[momofkids]

My little brother was born with this condition 54 years ago. He didn’t make it past a couple of weeks. This is such a blessing. She is beautiful, and I wish her and her family health and happiness. ❤️❤️ 🥰 Side Note: Thank you to each and every one of you for your well wishes for what could have been 🙏❤️ I am just so happy medicine has come this far 🥰

[babubiswas]

"I kept her, coz I loved her"...a mother's love is unparalleled . Respect to all mothers coz they have the most beautiful heart filled with love for her baby 💕

[AskMeABee]

Love that the mom was so comfortable nursing. Not everyone feels at ease and it's beautiful to see.

[nnennav]

That horrifying to have your heart in such vulnerable area. She is so brave!

[grandfathernurgle]

She's amazing. I've met her once. She was so strong and her heart was actually beating outside of her body. She's a soldier and I hope she lives a long life.

[megan]

The fact that she could fall and squish her heart gives me anxiety.

[dumbbell-door]

this gives me shivers. how careful she has to be and had been up until now. her heart is not protected with rib cage. she has my utmost respect for fighting throughout her life. keep fighting girl 💪😃

[unicornmadness]

This was very touching, her mother definitely raised her right.

[kvoartr]

Honestly, i've always imagined if someone's born with a heart that isn't on the right place and now a confident girl showing everyone that those people like her exist. I found this the most fascinating thing ever

[UnhingedCommenter]

I guess you can say that she has very heart touching moments when hugging someone...
Hope she stays happy for the rest of her life she is amazing and brave.

[patriciakelley]

She’s amazing and it’s so cool to watch her heart beat.

[khalilahd.]

What a beautiful family and such a wonderful little girl. She’s not letting her condition define her and I love that 💜

[hey-hellorichboy]

The phrase "I'm more than just my heart." Just hit so deep and yet it was meant literally

[j.ronnygibson]

Anyone who tries to use her condition against her is a monster.
We need to educate children how other children live

[viktoriafonn]

okay but she has some serious drawing skills!!
Also, she is really beautiful and hella strong!

[csun]

She is really brave that she shows her heart rather than hiding under clothing, that’s not something everyone can do so BIG thumbs up 👍🏻!!

[TheBlacksheepbabe]

She takes wearing your heart on your sleeve to another level❤️ good job for being confident and telling others about your condition

[ginamags]

I just love her confidence!! It’s also cool to see her heart beating. It does look like it would be painful but I’m glad to hear that it isn’t.