Adrenal Crisis - A short film

This short film made by Sophie-Louise White (who is a pituitary patient herself) gives a snapshot into the life of 19 year old Molly who suffers from hypopituitarism, among other conditions. Her mother Rachel is campaigning for an epi-pen style device to replace the hard to use emergency injections that are currently available.

[robdlaidler]

I too am on hydrocortisone for the rest of my life due to a pituitary tumour and having it removed. More informational videos such as these need to be produced to give patients the information they need in how to react to these situations.
I have a one adrenal crisis in the past 2 years, which frightened the life out of me. Having to spend time in A&E because an illness I knew nothing about.
It’s time more info was produced in video format to help others

[rachelharris]

I have no adrenal glands, they were removed 10 years ago due to Cushing's Disease. I have had one adrenal crisis episode (within 24hrs of a flu shot, so no more flu shots for me) that had me so mentally and physically incapacitated that I could not get the emergency shot in me. I ended up putting several hydrocortisone tablets under my tongue and calling 911 then passed out. Luckily I was found fast enough. I made it through treatment for stage 4 nasopharyngeal cancer (9 high dose chemos, 35 radiation treatments) this last year without one crisis. I did go into nuetropenic septic shock a couple of times, but no adrenal crisis. I credit that to 4-6x my dose and splitting it into 8 doses a day every 3 hours. I looked like humpty dumpty, but it kept me alive. I definitely support the idea of an epi style shot. There is no way anyone can figure out the shot or powder and liquid mixture process during the physical and mental strain of a crisis.

[nigelwylie]

This would make a huge difference to loads of us hypo pituitary patients. I also carry around a cumbersome and hard to use kit. My condition is not as bad as you, dear brave soldier, but like you, if I cannot take the Hydrocortisone tablets I am prescribed, someone has to inject me fast, to keep me going.

Keep up the good work of campaigning. I’m with you all the way.

[hollydaugherty]

If you have to inject frequently then your dosing is off due to improper dosing schedule or you aren’t absorbing your medications in your GI tract. You need to get a day curve test done and look into a pump.

[NadiaGillespie-dwxs]

I have had secondary adrenal insufficency for nearly 13 years and had 40 crisis in this time. I have to take hydrocortisone tablets three times a day daily for the rest of my life to stay alive plus the emergency injection in an emergency ( adrenal crisis). It is so scary and whoever says you can live a normal life with this condition is either very lucky or in denial .

[The_New_Abnormal_World_Order]

I've used the emergency Hydrocortisone kit, it splintered my fingers with glass, and is unpractical. I'm very lucky; they scared me by telling me I had a life threatening condition and would be on tablets for the rest of my life, when in fact my condition was very mild, and after one year they told me I no longer had adrenal insufficiency and could stop the tablets.

[MsMousepusher]

It's November now. Back in June my 22yr old son was diagnosed with a brain tumour. It's removed, but his pituitary doesn't work. On November 5th, ( ironically the same night as in your film) he had a seizure, fell and broke a vertebra. I struggled to give him the hydrocortisone injection. The powder somehow bunged up the needle and wouldn't draw up the liquid. It was so frightening, I was shaking like a leaf. I drew up more water, and that seemed to free it. I agree a pen would have been better. I was the only one who had training. What if I had not been there? No one else would have had a chance. It wasn't until that night we realized how serious it was. I hope your daughter is still doing well. xx

[X-OR_]

I Hope Santa will give me a new Pituitary Gland for

[rumpelcita]

How is molly doing now? Is she alive? Sending love.

[josephinejose]

For me, I was also diagnosed with addison's following a pituitary tumor removal and I am also taking hydrocortisone
I feel like I have no idea what my pituitary crisis' will look like, but (I believe that) my pharmacist told me that I could just ask for extra pills before calling 911.

[stevewilson]

Hi, my name is Blythe and I have Addison's disease i went for my doctor appt and came home then later my dad died back in 2022 he didn't get heard about it. I worry about this Adrernal crisis. I don't what this to happen to me. 😢

[ashwinihumane]

Can anybody tell me addhison desease can cure? Plizzz reply me