Naomi's Lupus Diagnosis

#DYK that hair loss disproportionately affects Black women with lupus? Early diagnosis and treatment are critical to preventing long-term consequences of the disease.

Watch @NaomiRoseM's video about how hair loss and skin involvement led to her #lupus diagnosis.

[ZaneiYah]

I've had sle lupus since I was 19. Praise Jehovah, I'm 37, and still here! ❤ 🙏🏾 Mine effects me inside out! Including skin, and hair. I also have pure o ocd, ptsd, uterine fibroids, and fibromyalgia. Painful situation, but I love life regardless! My husband of almost 20 years is so loving, and supportive. ❤ You are beautiful! And you know The Most High keeps us strong. Keep shining bright sis. You are a super star! ❤❤❤❤ 🙏🏾 🌟 ⭐

[kimkimberly]

We are Lupus warriors. We fight to the end.

[antoinettehelm]

I have SLE Lupus praying for us all 🙏🏽💜💜 who's suffering it's definitely painful 😣😢

[LauraReed-wuww]

One key to dealing with it is to NOT STRESS over anything.
I used to stress so much before the diagnosis, and now ive been more in control of my emotions than ive ever been because i know i cant afford to get sick

[monicaw]

Be encouraged and take things easy. Love and prayers for you and all the Lupus warriors ♥️

[ritalewis]

❤❤❤ Hang in there I was diagnosed with Lupus SLE 2019 and I have my day’s but I try to encourage myself every day my support system is not the best and that I try and Not worry I’m just so Very grateful to yet be alive ❤❤❤

[barbarabanks]

I have it as well. Be gentle with yourself and be an advocate for your health. Praying for you. Keep fighting 💪.

[GabbaDabbaDoo]

my mom has lupus and she has had a TON of health issues. similar to u, she developed a type of alopecia and both her and i nearly died when she gave birth to me. stress is a huge trigger for her and there is nothing but stress in her life. she’s not doing well. but ur not in this alone ❤❤

[FRESHWESSTV]

SLE, my diagnosis took 10 months after surgeries & many ER & doctor visits & we keep going!

[sinjinmonsoon]

My hair fell out. I have rash, headaches...its awful. I wish you health.

[genie_natl.]

My cousin is fighting SLE and she is in a very bad critical condition right now, first ICU then MICU then Ventilation and the cycle kept going on, Please pray for her😢

[PatriciaAlcorn-wy]

I have lupus since 2016. Effects my vision skin hair and joints. Plus i lymphedema osteoarthritis lumbar spinal stenosis. But i fight threw pain. I just thank God I am still here. Now having problems with my kidneys 🙏🏽🙏🏽🙏🏽

[milliondolladivabritt]

I, too have lupus (almost 16yrs) as well as other complications ( nephritis, hypothyroidism, anemia, alopecia just to name some) and have been on dialysis. I just want to say to the ones who suspect they have it to take charge and talk to a doctor right away. The sooner they figure out what's going on, the better. Also DO NOT be afraid to speak up and be persistent if the doctor doesn't believe you. If you must find another doctor, this disease is too devastating to be taken lightly by a doctor who won't listen. For my newly diagnosed lupies, I know this is a lot, but remember you are not alone. One of my biggest advice is to please be compliant with your medications and doctors' appointments. I know it's easier said than done with everything we have going on but trust me it's not worth more meds, more hospital stays/visits or missing out with loved ones. Take it from me, taking your medications and going to your doctors' appointments will save you from so many problems. Not to mention your life.. Phew! I didn't mean to go on like this but if I can spare someone from all the unnecessary heartache then it's worth it. Remember we have Lupus, Lupus doesn't have us! Peace and Love everyone.

[kristibbradshaw]

I feel your struggles and you are not alone.

[d.c]

Wow I believe you can be heal from anything

[empirejackson]

So sorry babygirl. Hope your journey is brighter than mine

[jocelynunderwood]

Same symptoms blad spots, bumps on my face, rashes. Doctors said it was Lupus, but I had a Parasites infection that they wouldn't treat me for. I found a doctor to help after 8 months & being treated right now. Lupus symptoms are reversing.

[KishaJohnsonMcrae]

God bless you. Baby girl, I’m 53 years old and have had lupus since I was 19. I'm starting a podcast on YouTube to raise awareness and encourage those who feel lost and alone with this disease. We are warriors, and we must help other lupus warriors not to give up. God is keeping me strong. If you've been diagnosed and taking care of a special needs child or just live with being diagnosed, let’s connect. I would love to interview some of you and share your stories, testimonials about how you cope to offer hope and support. I plan to share much needed awareness on prioritizing emotional care because it’s a Fight …a fight we don’t have to endure alone. Hoping to have content starting in August. I will be following yall God bless.

Love you, KWEENs!

[iluaidanr]

This is my story too. Praying for you 💜

[pratikshareddyb]

Its all about what you put into your body. Night shade vegetables, processed foods etc are super tiggers.