Advanced Prostate Cancer Story: Jan Manarite Advocated For Her Husband For 13 Years

PCRI's CEO, Alex Scholz, interviews Cancer ABC's Executive Vice President, Jan Manarite, about Cancer ABC's patient services, her best practical tips for men who have been recently diagnosed with prostate cancer, her husband's experience with prostate cancer, and Cancer ABC's upcoming (as of the time of this writing) conference.

Cancer ABC's is a non-profit organization in New York City whose mission is to provide education and other resources that bring tangible improvements in the lives of cancer patients. Although the organization provides support to people afflicted by all types of cancer, it has always had a special focus on prostate cancer.

0:56 What brought you into the prostate cancer space?

3:43 What process did you and your husband use to decide on treatment?

6:13 Can you tell us more about Cancer ABC's?

10:57 What are your biggest pet peeves in the prostate cancer space?

13:00 If you had to give five big points of what you wish every prostate cancer patient would do, what would they be?

17:32 How can men with advanced prostate cancer and their loved ones maintain hope?

19:33 What is the latest news with Cancer ABC's?

Who we are:

The information on the Prostate Cancer Research Institute's YouTube channel is provided with the understanding that the Institute is not engaged in rendering medical advice or recommendation. The information provided in these videos should not replace consultations with qualified health care professionals to meet your individual medical needs.

#ProstateCancer #CancerABCs #PCRI

[lifeinmyemptynest]

I’m so glad that I found this video. My husband is newly diagnosed. Gleason score 9, PSA 8.11, spread to spine. His urologist said he had 3 to 5 years, even with hormone treatment. I asked my husband today if he wanted to get a second opinion, he just shrugged his shoulders. Hearing that your husband lived 13 years gives me hope, thank you for sharing. 😊

[sandividendo]

As a loyal follower of Alex & Dr Scholz I am sorry to say that a conversation on "PSA 7, 000 and 13 years" without touching on "How?" has been a disappointment. One would expect a few words, at least, on the type of treatment(s) followed and the benefits obtained.

[tomswoverland]

Thank goodness for the wife’s. I have Gleason 8 now in remission if it hadn’t been for my wife and investigating my disease and insisting I get a 2nd opinion I don’t think I would be here. She got me into Mayo and after 2 years of aggressive treatments I am doing well. I do feel I have a future. My own doctor at Mayo told me you have to advocate for your self. Thanks for your videos I have learned a lot about my disease. Keep up the good work.

[stitcheruk]

Where is the story ? 13 years and very little information on how her husband progressed during those years and the treatment that was undertaken. That’s what I expected to be covered in the discussion.

[dankasper]

Awesome.i was able to meet Joel onceHe is a true PC hero.now seeing Jan. She is also a hero. V Dan Kasper 10 years metastatic stage 4,
.8 years undetectable. Never give up hope, always keep the faith!!!

[JimJimJimJim]

One of the joys of attending the PCRI conferences in LA each year was catching up with Joel and Manarite.
Always inspirational!

[RealRocdad]

I wish I had a hero like her there for me... She was probably the best medicine.

[luketoni]

Thank you for sharing your husband's journey. Glad to hear about his 13 year's survival despite the presenceof metastatic disease. Please allow me to ask what his performance status was during that period of time. Was he very sick for an extended period of time? How much pain was involved?

[elmerkuan]

I don't see how her husband recovered by his high psa. But she was focusing on her research work about prostate cancer talking to Dr. would be informative on her part., but what we want to know who had prostate cancer how we cercumbent hight Psa... Her research and study is not our ultimate concern but to recover our physical condition..

[ak-nuhn]

Doctor I have a cyst 4 years ago, I used to have painful ejaculation, now for the last 2 months I have been having burning pain, I was undergoing urine infection treatment which did not stop and lastly there was extreme pain in prostrate, now there is pain in pelvis area towards the bone, I got regular CT and ultrasound done last month, there was no stone, it was just ecoli infection. Are my symptoms of cancer? The doctor does not tell anything other than stone, prostitis and uti, and the pain is increasing with sitting.

[colemant]

More Amazing information Alex... THANK YOU!

[paulmartin]

Ten years metastatic-currently .05 PSA

[kevinl]

One of the causes of high PSA is aging, right now many doctors don't test PSA anymore

[billyjohnson]

Jan your great an advocate for the patient

[rogerembry]

You’re husband lived 13 with metastatic cancer, what was his Quality of life like

[nobodycamnotguilty]

I am curious to know what she thought about getting a biopsy. At one point should you get one.

[steveg]

If you do a remote with your Doc, you can record it.

[Mary-bxgd]

Can Someone provide the information on the podcast that was mentioned at the end of the interview? Thank you

[rogerdodger]

The PSI is not the very best test for prostate cancer. There is a newer more accurate (though more expensive) test called the 4Kscore test from Opko health that is available.

[patty]

Whether vegan diet helps to cure
this cancer?