Polycythemia Vera: Signs and Symptoms

Brady Stein, MD of Northwestern University discusses the pathophysiology and common symptoms of polycythemia vera.

[reecebell]

I was diagnosed through routine blood tests from my GP. I am so thankful she picked it up and sent me to a specialist!

[samaelmartinus]

16.9 hgb but docs say it's fine but I had all the symptoms . I hope they're not fooling with me smh.
In and out the hospital weekly cause of episodes of sweaty, fatigue, tachycardia, hypertension, blurry vision.
Through anxiety at me like they always do when they're too lazy to investigate. Ended up being pre diabetic and once I changed that all the episodes subsided big time. Hgb even went to 15.8 .hope I'm better. Still carry 81 aspirin just in case. Smh

[robertshrewsbury]

I had Polycythemia and had to get a phlebotomy about once a month, because my Hemoglobin was around 55 g/dl and my Doctor ordered it.
Finally I wondered about people with Anemia that were short of red-blood-cells analogously like an opposite to Polycythemia!
Then I looked up the foods that people with Anemia do not eat because they are iron blockers.
Many of these foods are called Oxalate's and absorb Iron. So then I started eating these foods (with Oxalate s) abundantly and after a
few weeks I had my Hemoglobin checked by my Doctor and my Hemoglobin was down to 16 g/dl and now over a year later my Hemoglobin is still 16 g/dl. That is a drop of 39 g/dl’s in a very short time and it held good. Sometimes just a simple procedures are workable.

Of course I believe that my mental procedures, meditations & thoughts had something added to this procedure that was synergy related that made it more effective.

Make it clear that I am not prescribing
anything to anyone, but expressing my own thoughts and experience.
However I would recommend that medical personnel investigate this.

Cordially, Robert Shrewsbury

[arvindthakurdesai]

Good morning Dr. I am from India and am suffering from PV for the last 10 years. I feel extremely fatigued particularly in the mornings. Can you please help me as to how lessen the fatigue to some extent? I will be grateful.

[pennysnickeldime]

i think i have this, but i dont know if i should be scared or not tho...

[TheProject-fwqc]

I had secondary polycythemia due to Testosterone therapy, this resulted in systolic congestive heart failure..  I came off Testosterone and by hypocrite dropped from 59.9 down to 48.4 in the mid normal range... I take Arginine and want to take Beet root juice.. Sine beetroot is a "blood builder" would it aggravate this condition?

[demidr]

My brother passed away from AML and my cousin has polycythaemia vera. Are those two related? And do I have a bigger change of getting it as well??

[FlipMacz]

Wow...he is amazing. Really appreciate this.

[donmulder]

What does he mean by high red blood cell counts? High RBCs, HgB and/or HCT as compared to reference ranges? Or higher end of normal?

[LindyFordNutritionWellness]

Thank you, Dr. Stein. I just had a patient get this diagnoses. I didn't know about the enlarged spleen. What recommendations do you have for food intake?

[Channel-gnsv]

What about covid vaccine if someone has polycythemia Vera?

[ladymuck]

Can you have jak2 mutations and be well? What about having the covid vaccines if you have jak 2 mutations?

[lisarowe]

I have never had symptoms or get sick...i have had this since I was young

[ahmedfathi]

Are there cases diagnosed as pv within twenties ?

[justinaunogwu]

Thank you so much Dr Dagba for curing me of polycythemia vera😭🙏🏼

[charlespierce]

Every cancer patient healed is a customer lost

[rareform]

Doctors say no exercise stay low .. Bull Crap !