Common Signs and Symptoms of Polycythemia Vera

An explanation of common signs and symptoms in polycythemia vera, including age, hematocrit, white blood cell count; a detailed discussion on whether white blood cell count really plays a role in diagnosis and treatment of polycythemia vera.

[donmulder]

Oddly enough I was told by military doctors I was a behavioral health issue and was put on Paxil against my wishes. I stopped taking it after the first bottle seeing that it wasnt fixing my problem as I knew it wouldnt. My platelets were abnormally high for my whole adult life from age 18 yet they all dismissed them as not an issue. My symptoms were always what this lady doctor called "constitutional." Tingling and numbness in hands, crushing fatigue, lightheadedness, feeling sweaty all the time, redness, and lost my voice and was unable to project my voice anymore but could exercise well. My white blood cells were always just a tad bit low, platelets in the 400, 000's, and my red blood cells were in the mid range around 5.00. My hemoglobin used to around 16.2 but now runs around 15.7 to 15.9 and my hematocrit runs around 45 to 49. Diagnosed as ET but now I have a new doc and he thinks it's PV. I am JAK 2.. No apologies from military medical people for labeling me a nutcase though. I am taking aspirin only and am 60. I am doing meditation and prayer and exercise and good diet.

[hodonkain]

Interestingly enough, you can also ask your patients if they have a history of easily getting shocks from static electricity (more than most people). It's a strange observation but it could be tied to the excess Iron in the blood.

[robertshrewsbury]

I had Polycythemia/cancer and my g/dl's was 62 g/dl's instead of 16 and I had to get a pint of blood (Phlebotomy) drained out of me a lot. So I started taking oxalate foods until my hemoglobin was back down to normal at 16 g/dl's Strawberries are good oxalated, but so is rhubarb, but I thought rhubarb was too much Oxalate, so I stuck with strawberries. I am aware that too much oxalic can also be harmful.

[dustindeyo]

Mine is primary and it sucks im 37 and have had it for 7 years it’s a roller coaster ride can’t wait for them to get a cure for it

[ilmendo]

I have high hemoglobulin, high mcv and mch (celiac disease with mthfr, thyroid and previously a metabolic syndrome) with low mov and rdw.

[robertshrewsbury]

I had Polycythemia and had to get a phlebotomy about once a month, because my Hemoglobin was around 55 g/dl and my Doctor ordered it.
Finally I wondered about people with Anemia that were short of red-blood-cells analogously like an opposite to Polycythemia!
Then I looked up the foods that people with Anemia do not eat because they are iron blockers.
Many of these foods are called Oxalate's and absorb Iron. So then I started eating these foods (with Oxalate s) abundantly and after a
few weeks I had my Hemoglobin checked by my Doctor and my Hemoglobin was down to 16 g/dl and now over a year later my Hemoglobin is still 16 g/dl. That is a drop of 39 g/dl’s in a very short time and it held good. Sometimes just a simple procedures are workable.

Of course I believe that my mental procedures, meditations & thoughts had something added to this procedure that was synergy related that made it more effective.

Make it clear that I am not prescribing
anything to anyone, but expressing my own thoughts and experience.
However I would recommend that medical personnel investigate this.

Cordially, Robert Shrewsbury

[justinaunogwu]

Thank you so much Dr Dagba for curing me of polycythemia vera🙏🏼