Life, Unexpected: Hope For Young Palliative Patients And Their Caregivers - Part 4/4 | Full Episode

Dr Grace Ng, the Head of Star PALS, shares her thoughts about dealing with the loss of two very young patients over the weekend.

Nayla celebrates her second birthday, as her parents reflect on their journey with her through her diagnosis of Trisomy 18. Edwin, a 39-year-old with Duchenne Muscular Dystrophy, ventures out of the house for the first time in a while, defying the limitations of his condition and embarking on a two-hour journey to a local hawker centre for a taste of his favourite char kuay teow. He also has a chat with Dr Chong of Star PALS about life and dying.

WATCH MORE Life, Unexpected

0:00 Being One of Us
7:22 Amelia’s Travels
11:55 Chloe’s Quality of Life
18:37 Learning from Netra
25:29 Nayla’s Special Day
33:39 Edwin’s Dreams
45:00 For Those That Hope

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About The Show:
Follow the inspiring stories of four individuals under paediatric palliative care as they and their families navigate the unexpected realities of life and death with courage and love.
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#CNAInsider #LifeUnexpectedCNA #Illness #Caregivers #PalliativeCare

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[funlovin]

Rest in Peace Edwin. Stay strong all children & families going through these challenges!

[MyPianoRiffs]

Thank you once again, Team CNA Insider, for this heartwarming and revealing series❗Truly inspired by the parents, their special children, Team STAR PALS, and all other medical and social personnel featured -- all so caring, compassionate, understanding & empathetic❗💞As the popular saying goes, Real Heroes Don't Wear Capes💕May the Blessings Be🙏🧡💙

[casgray]

Edwin you are an inspiration to me and you will have so much love in heaven with all of the other angels. Sending all of the families my love and prayers from the uk. 😢❤❤

[amendatan]

Such a phenomenonal documentary in portraying the reality of challenges that the Rare community faces daily, while balancing it with such dignity for the participants. Thank you for bringing awareness to this community that lives among us but we are often blinded to.

And these parents are amazing, deeply inspirational.

[Jamie-yzhs]

Rest in Peace Edwin. You had such a wonderful life 😢

[ColleenC-nv]

Thank you for allowing me to be a part of these truly sacred journeys. This village of patients and their caregiving loved ones are the courageous light-filled earth angels among us. May GOD bless them as much as they bless us.💜✝💜✝💜✝💜✝💜

[bajoobiecuzican]

Singapore is an advanced civilization. I’d love to live there. ❤

[Jack-hlys]

Life is so unfair. We desperately need a permanent for all health disorders real soon.

[sarahfowler]

I think if the child has good quality of life and brain working yes do what you can I know ppl aren't going to be happy with me but I'm also talking as a parent of a disabled child who has sadly passed but the dad that brought his daughter back from cardiac arrest wasn't right she has no quality of life and I always thought would I like to be like that n someone brings me back to carry on with that life no I wouldn't it broke my heart when my son died but he couldn't walk or talk fed through tube downs syndrome fragile x in daily pain only way to tell was cry ❤