I Suffer With Cluster Headaches

I want to bring awareness to a condition most people don’t know anything about. There’s no cure and I haven’t found any way to relieve the pain... so please excuse the crying face. Hopefully this can get into the right hands and maybe I can attract the attention of a doctor or clinic who specializes in cluster headaches.

[sammyk]

Girl you don't have to explain anything, , everyone who found this video is suffering and we are all in this together ❣️ we will be fine

[desegenperumalkistasamy]

I'm in this with you guys. Been suffering for more than 30 years. No one understands your pain. Try making plans to go out and 10 minutes before you ready to leave the headache starts, try explaining that to people. It sucks. I'm taking topomax and trepelin and it really helps. Thank god.

[thaddeusinge]

Father God I come to u asking u to heal Jackie, myself, and everybody under these comments who suffer with this pain that deeper than any pain we've felt please keep us strong mentally and physically and please delivery us...In Jesus mighty name I pray....
Amen! Luv to u
all. I started dealing with CH in 2020...2023...and my 3rd attack just started May 25, 2024 and yes this makes a grown man cry too!💯👏🏾👏🏾👏🏾 Peace, Hope, &Luv.

[maddryan]

You are so brave. Thank you. I am in a cycle right now. I don’t feel alone because of your video and the comments. Bless your heart

[BobMazzo]

My son is dealing with this for years. He's 21 now. We had a special prayer and healing church service today and believing in God. God bless you Jackie.

[smokiebaer]

40 something years ago I had my 1st cluster headache. After 12 year of clueless doctors and many different drugs, I came across a doctor that had read about a cortisone injection for cluster headaches just that week. Desperately seeking anything I agreed to try. I got the injection in what she called the cluster button. A bump between the back of my head and neck. Since that injection I have had 3 tiny tiny cluster headaches. 30 plus years of being headache free and still going.

[charlieshaffer]

I been getting clusters for 22 years. Mine come exactly 90 minutes after I fall asleep at night. I hate going to bed knowing I’m gonna wake up in excruciating pain. My heart goes out to you. I been kinda lucky because so far mine come about every 8 years usually when autumn comes around and last about a month. My heart goes out to anyone who suffers from these terrible headaches it’s definitely a life changer

[PeacAndLove]

CH warrior here. Since 2006...keep Fighting.

[TwixOSRS]

Cluster head of 5 years here:

After almost a year my cycle is back and relentless.

It really makes me think how much I took for granted when I'm in remission from these debilitating clusters. My cycle seems to begin in the summer and this truly is the most painful thing I have ever suffered with. I would never wish this upon anyone. It also it so difficult being a CH because when you explain Cluster Headache, people automatically assume its just a headache and we are being over dramatic which can lead to such frustration and sadness. People who don't deal with these don't know how lucky they truly are. I'm praying these cycle ends soon because my goodness dealing with these 1-3 times a day is devastating.

Also that moment of relief after the cluster finally ends really makes you appreciate life when we don't have them - but also disheartening because you know they will eventually come back 😪.

I hate this illness, but whoever reading this - you aren't alone. I know we don't know each other but I love you all. Please stay strong. God have mercy on us, because we truly need relief from this. I also hope that the medical community starts discovering some breakthroughs for this because everything I've tried thus far does not work.

[kimberlybranch]

This. This has been my life since I was 13 and I'm 40 now. I literally feel your pain. 💔

[pschuit]

I have been having them too.... spring and fall. Hang in there. Nobody knows our pain

[bobmarlon]

The worst pain ever. My last for 3 to 4 hours. Nothing take the pain away. I don't want loud noise, light, talking. If feels like my left eye is being pushed out of my head. I wouldn't wish this on my worst enemy, if I had one. I feel your pain young lady.

[FosteringW_love]

I’m in a season of cluster headaches as well, at least 2-3 times a day! My heart goes out you my dear, praying for you....hugs

[heathersmith]

I'm crying with you. It's so sad that no one understands and it's great to hear your story is exactly like mine.

[Rahimzjanovs]

Omg girl, feel for you badly! Please stay strong ❤️ I've had my CH for about 12 years now. For the first 8 years, I was told and thought that it was just a migraine. But with my own research, I found that it is actually a CH. Nothing have helped to treat it, I just suffer with it and you know the rest. I consider myself luckier than others as mine cluster headache cycle is really weird and has at least 1 year break between them, some get it as often as every 3 months

[andreaallen]

Two hours! this poor girl doesn't deserve this. My heart goes out to anyone dealing with this horrible condition.

[michaelasykorova]

Waiting for the pain. That’s really scary. You are so brave. I hope they will find a cure. This is just hell on Earth. 😥

[julianaboratto]

How are you doing now Jackie? Oh sweetheart I feel your pain. Had my first cycle last spring (started Good Friday and went on for 7 weeks). Never suffered headaches before that. You are describing EXACTLY what I went through. Have not had another cycle since but Easter is a week away🙏Stay strong you are young and have alot to keep going for. The medical community will find a cure one day, we have to have faith. I'll be praying for you xx

[kristalt]

Watching this brings me to tears. I’m a woman in my early 30’s and I’ve been dealing with this since I was 17-18. Being afraid to go to sleep because you have to deal with this all over again the next day... I am 100% with you... it’s been waking me up like clock work and reaches its peak almost immediately. Prescription medication (imatrex/sumatriptan and indomethacin) doesn’t really help (even when it’s taken before an attack starts), let alone over the counter relief. I’m still going through my “migraine” episodes that started about 2-3 weeks ago, and it’s affecting my daily activities including my full time job. The pain is unbearable and feels like the left hemisphere of my brain/left eye is on fire while being stabbed with a hot knife.
I do wish that this DISABILITY was classified under a different name because calling this a “headache” is an insult. If there’s anyone out there that has any other suggestions for relief, please let me know

[Goggalor]

I feel like this perfectly illustrates the other side of living with them, which is the emotional toll it takes on you going through an attack and the fear and dread of "when is it going to come back?" It's so draining trying to get through an attack and not worrying about the next