Reaching Your Limit: The YOPD Council

The YOPD Council discusses how understanding your own mental and physical limitations with Parkinson's can improve your quality of love. Guest panelist, and founder of Ping Pong Parkinson, joins this YOPD Council.

0:00 - Introduction
3:06 - "I Love Ping Pong" Performance"
6:30 - Nenad's Story and Ping Pong Parkinson
11:14 - Physical Limitations
17:22 - Professional Limitations
25:47 - Differentiating between your symptoms and YOU
41:24 - Asking for help
46:33 - Going out to eat
49:43 - Traveling

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[lili]

So glad I found YOPD on YouTube, just diagnosed two months ago, I’m scared and angry, but you guys give me some courage to face PD, love every each one of you❤️

[anjaschwalen]

I love you guys. Your travel tips have helped me so much. I also appreciate your sense of humor and resilience. It is so important to be in community.

[thankfulgal]

I can relate to sere’s problem with the typing issue. I used to be a secretary and I was adamant good one but I couldn’t do any of the jobs I used to. SO I lost my identity as well as my income. Thank you to all of you. I get a. Lot more from these webinars then I get from my medical teams.

[pgtq]

You guys are great! I love listening to everyone and hearing their experiences. i particularly related to the idea that we need a purpose- we can't just receive because pleasure comes from giving, and feeling useful. Bravo everyone

[NenadBach]

What an honor to be your guest. Davis Phinney Foundation and especially YOPD is my favorite group that Speak substance

[rajgupta]

I have PD for last 7 yrs or so. After being diagnosed as i had only minor tremors that time .I was told for several years as essential tremors . I am psychiatrist and continue to work
and hospital staff was very supportive.I was planning to quit as i did not want to drive so hospital arranged who will drive to hospital every wednesday and other days i did telepsychiatry. I had to admit that Movement disorder specialist did nt advice and actually . I have spent hours watching most of the lectures on PD and making notes .I started treating myself and exercising doing ti chi and t other exercises . When i started having dyskinesia . I was on cr sinment three times daily and evening will have dyskinesia. So i changed i tab or carblevo 25 /100 and half of cr and that fixed my dyskinesia. I have not stopped my activities. My family is very supportive as my son happened to be neuroradiologist and daughter is social worker. She always wants me to take wheelchair for travelling .I try not to take wheel chair if i feel confident to walk. i did work until i was 80 yrs of age .Staff at work were very supportive and i was blessed .I am becoming self made movement disorder person. I wish i could join movement disorder fellowship. I learned lot thru UTUBE .I also see people who are in support group. I used to do trademill 20 mins at time ;since i get tired i do four times 5 mins. I have also doveloped non motor issues .
I check BP three times or more at home takes meds accordingly. I almost busy full time on these issues. Its important to self educate. I have one relative who is movement disorder
when i consulted he did nt show much interest .I dont know how good he is taking interest in PD Clients

[juliet-m]

I love this YOPD community!! Thanks for getting real, again! Nobody knows how we feel. We are not completely disabled... but not completely independent either. Every day I just want to "be normal". I refer to YOPD as this thing I deal with, not who I am!
I am NOT a Parkinson's patient!! I am a PWP who is doing my best to control my symptoms and even worse almost, the side effects of CD/LD. Appreciate this panel! Thank you 😘

[paulaelliott]

This was so helpful. Nenad I wondered if that kids wooden paddle with ball on string that I played as a child would be good? I'm more comfortable at home and do keep moving. Thank you.