Chronic Illness: How to Grieve your Old Self

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In this video I share tips on grieving your old self when living with a chronic condition. These tips are simply things that helped me personally, they might not work for everyone but could possibly get you on the right path to finding your own way to grieve. What has helped you the most? Let me know in the comments!
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Ehlers Danlos & I

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Do you have any tips on grieving your old self? Let me hear them!

ehlersdanlosandi

I think the good thing about having had symptoms my entire life is that I don’t ever seem to have to adjust to a new normal or miss abilities I don’t have anymore. It sounds like it’d be really hard having a relatively normal life and then having an onset of chronic debilitating symptoms.

hannah-lkoc

I have hEDS too, and luckily my bad pain symptoms didn't pick up until I was out of highschool. I did have like growing pains and dislocations and all that, but I had so much energy and could ride roller coasters and hike and generally do normal things. Now I'm in pain all the time and at 22 have to sit down for a while when I'm at the grocery store, and have to do physical therapy and take meds just to exist without collapsing in on myself like a star. Idk I'm trying to do therapy to cope, but it's really sad when you remember all these good times you have as a kid only to remember that you'll probably never feel that way again and every doctor tells you there's nothing you can do but manage.

Gnomeybone

I have Vascular EDS. I’ve known for ten years but lost my career last year after my first major medical event which caused a bucket of others.

The jealousy of healthy peers is a great point. Something I’ve been dealing with often. All I do is compare myself to others my age

TechnicallyJustin

Great vid. Thanks. Any tips as you how to not focus on your illness when you don't yet have a diagnosis?

emilyanderson

Do you have a video on joint stabilizing exercises?❤

hele

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