Our Children With Rare Medical Conditions | On The Red Dot | Undiagnosed - Part 2

Atira’s seizures are back after 13 years. Dzakwan has a meltdown in the mall. And a diagnosis has been given for Jayden's condition at last! All in this week’s episode of Undiagnosed.

One of the symptoms for Atira and Seana’s condition is seizures. Doctors cannot treat the underlying cause of these attacks without a diagnosis; they can only manage the symptoms. However, Atira is now faced with a familiar challenge as her seizures are back after 13 years!

Meanwhile twins Dzakir and Dzakwan are brought out for lunch. But a routine lunch outing at the mall takes an unexpected turn when Dzakwan has a meltdown.

16-year-old Jayden’s condition is finally diagnosed! However, latest research findings show that patients of his condition possibly develop a new symptom before they turn 18. Is Jayden at risk too?

WATCH MORE Undiagnosed

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About On The Red Dot: CNA's weekly programme documents the stories of ordinary Singaporeans and celebrates their resilience, identity and sense of belonging.
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[sugunaite]

Big kudos to the older siblings helping out the twins so patiently!

[buyaozheyangma]

Honestly just hope that people who want to be parents could all watch this and say yes I'm ready to be a parent knowing that my child could have these genetic/health issues, I'm ready to deal with whatever that comes and I really want a child that badly.

people don't know what they sign up for before they decide to fertilize themselves.

[roxanaescobar]

I was amazed at how fast they named the syndromes name for the sisters...until I realized it was the doctor's name 😂

[beezlebub]

dzakir and Dzakwan have lovely older siblings.

[ocswoodlands]

Meltdowns ....

If you ever see any special kids/adults having a meltdown what you should do is

1) Decide if you want/can help. If cannot help then pls move on. You are of not much value to the parents/caregivers.

2) if you decide you can/want to help, ask the caregiver (at an appropriate time) what you can do to help. If their answer is nothing, don't feel bad. Just move on.

3) No need to point here point there. Nothing unusual about a meltdown for special needs persons.

How do I know?
I am the parent of a SN teen who once had a major meltdown in the middle of AMK bus interchange..

[sammie]

a friend of mine has two beautiful children with mental and physical disabilities. The parents were tested and they both carried genes that produced problems for their children. They have done well to stay together, endure, work with the medical system, therapies and although they would never be on their own...they can do basic life skills...am so proud of all of them...I cheer all parents who go through this daily, for decades and the worry they must have when they pass away...who will look out for their disabled adult child...praying they have siblings.

[LadyShyye]

The twins understand a lot and know how to show their wishes.

[evannewu]

Kudos to the families n parents! Good job

[share_accidental]

are there really people that judge special kids for having meltdowns 😡😡 it’s beyond their control…

[happycook]

I feel so sorry for these families. Necessary care is 24/7 with no breaks and no holidays. Very difficult!

[chantalspruill]

Best blessings to these families. This is why having compassion is so important.

[Lulu-utpv]

This is a lovely sister but my heart goes out to the kids and their family... At least they are teaching them to be some what independent however their siblings will have no choice but to care for them for life

[marinyrodriguez]

All parents and family this children are so wonderfull and supporting.

[jmednerth]

ASD, and other syndrome - twins face characteristics, height, fingers size abnomal

[blackcitroenlove]

I could see Jayden using a Tobii Dynavox. The issues are obviously only physical.

[HelenEk]

Tip: use baby call with camera and alarms if needed when putting a special need child in their own room. It really helps. For instance you could put an alarm on the door, so you know if the child leaves their room in the middle of the night.

[alexdavis]

Why are there not support staff in the schools? I was an SEN teacher in England and had classroom support in the form of paid staff called learning support assistants or teaching assistants, I’m shocked the grandma has had to go with him every single day of his school life! Surely this isn’t normal in Singapore?

[hilaryb]

Are there not any support staff in schools? I’m in Canada, and special needs students have Education Assistants to look after their needs while in school.

[ziyao]

its raelly really really real fustrating to get diagnose with rare genetic only when at adulthood and realised the symtoms were already shown whenn at young age but not discovered/awared of

[CrystalCat]

Atira needs some noise cancelling headphones. ❤