Libbie's story: Larsen syndrome, a rare genetic disorder

Libbie came to Children's Hospital of Wisconsin with Larsen syndrome, a rare genetic disorder, and it was uncertain whether she would ever be able to walk. See her amazing journey.

Ranked highly by U.S. News & World Report and Parents magazines, Children's has exceptional orthopedic expertise. Our team has specialized training in all areas of orthopedic care, from spine, trauma and fracture care, to sports medicine and concussion care. We treat all orthopedic conditions, from routine to serious.

[SreyasiChakravarty]

a big shout out to the parents! and of course the doctor :)

[BooooMgrew]

my little girl has LS it's an amazing feeling when they start walking and even running (in her own special way) a long way to go for her to walk without discomfort but she's happy and independent nice to see you beautiful girls story.

[e.k.]

Oh my god that doctor's going straight to heaven

[sophiawilliams]

This is LEGIT my friend from school- And shes awesome~

[samuelstoner]

Bless her heart. The improvement in her legs is astounding!

[lisap]

What a beautiful little girl. Lovely story

[MrShoaib.k]

absolutely amazing and inspiring for me
as being a father of a 2 month Old boy with Larsen syndrome. but my baby's severe and still in hospital.

[agathechllt]

What an amazing little girl! So happy to see her walking and enjoying life.

[j.k.]

She's so adorable!!! I'm glad she's able to walk and move around now! She looks so happy :)

[galady]

Libby is a true gift! Her spirit and joy is real. Libby, her parents and the specialist together provided Libby the opportunity to lead a happy and full life.

[mypham]

The parents are just so amazing it’s humbling. Thank you.

[homeworshipwithmartyandamy]

God bless the parents and the doctor that were able to help this beautiful girl walk!

[sadalien]

What a cute girl and a beautiful family. So happy that she's walking <3

[fauxmanchu]

My deepest respects to the parents and the medical team. Amazing people. 👏👏👏

[Ritercrazy]

She's amazingly blessed to have you for her parents.

[stepht]

Such an amazing little girl...And a terrific outcome!! That's it☺️I found my happy story 💖

[robinsmith]

WOW -- what a great recovery and future for this lucky little girl whose path crossed with her adoptive parents and the gifted surgeon. So happy for Libbie.

[arizona]

WOW!!! What great parents and Doctor. Thank God she has you both and this doctor.

[HardeHugo]

It brings up memories, its great to see how she is healing and is able to walk now! But why does it bring up memories? I have larsen syndrome, i was not born this way, the syndrome has a wide variety of symptoms. But my youngest sister was born this way, with her knees the wrong way and she got surgeries too. She still has the scars over her knees. The first moment my sister could walk without any holding on she was like 3 years old it was amazing to see. And to this day we struggle with our problems.

[chandrabrown]

What a little Oh she is absolutely BEAUTIFUL!!!! INSIDE AND OUT!!!! Here's her some precious little flowers! 🌸🌼🌺