California babies born with rare genetic disease

If something happens that impacts where you live or improves life where you live, ABC7 will be there to share that story. And we don't just report what happens, we care about what happens -- because we live here, too.

When you see news happen #whereyoulive, share it with us by tagging your social posts, video, and photos #ABC7Now, and you might be featured on our social media pages, website, app or TV.

MORE ABC7 NEWS:

------------------------------------------------------------------------

-- Get all our special reports, weather, and traffic stories in one place.
--Like our page for buzzy stories, breaking news, and more.
-- Follow us for breaking news as it happens.
-- Tag your photos and videos #abc7now and you might be featured on our social media pages, website, app or TV.

Don’t forget to subscribe to our channel -- thanks for stopping by!

[bee]

Any updates? My son was recently diagnosed with this.

[jaykay]

It's hard to imagine how hard this would be. Pray for miracles, everybody.

[kgfairgo]

Experimental treatments should be free

[LyleTuttle-bc]

This is a 6 year old video. So what is the update on these 2 disabled baby's?

[francishollingshead]

I can't help but think of Natalie Merchant's song "Wonder", which was inspired by a pair of twins with a genetic disorder.

[akidmyself]

Even if you don't want artificial implantation, you should still get genetically tested to understand the risks. At the very least you can prepare yourself for what is to come.

[jadesinman]

Ashkenazi... that explains it all. The gene therapy treatment costs about 5 million dollars.

[chanabayla]

She knew jscreen existed. Almost all of us jews know since 90%of the common uncommon disorders if u will happen to us predominantly and even if she didn't the minute her genetic counselor if she even bothered to go to one, found out she was Jewish the test would have been immediately. Btw I know someone who was 16 w/this

[heidi]

Now I'm thinking of Mitchell disease bike Kaiser just doesn't want to pay for all the kids' treatments and whatever else so yeah Kaiser is bad

[tombstonevulturecommand]

Mobile phone right next to baby, most parents refuse to protect their children's health until something goes wrong.