Dr. Gilbert Hosts: Advocacy & Parkinson's Disease

This Dr. Gilbert Hosts broadcast focused on advocacy and how YOU can personally make a difference in the future of Parkinson’s disease. Our special guest and partner in the fight against PD was Ted Thompson, Senior Vice President of Public Policy for The Michael J. Fox Foundation.

On behalf of UPAC, Ted and his team recently spearheaded a remarkable new PD advocacy initiative - the National Plan to End Parkinson’s Act. This is exciting news for the PD community!

2:30 Ted Thompson’s presentation
17:43 How can we make the general population more aware of the relationship between toxins in the environment and Parkinson's disease?
19:48 If there is evidence out there that a chemical can cause harm what is the process for getting that information into the hands of lawmakers?
22:17 Is there a way to get the list of chemicals banned in other countries (but not banned in the US)?
22:55 You had mentioned in your talk that we are not able to influence the drug price itself but we can influence affordability of drugs. Can you explain that further?
25:01 Exercise equipment is not covered by Medicare even though exercise is a very important part of Parkinson's treatment. Is there a way to advocate for Medicare coverage to include things like exercise equipment?
27:36 What is the current state of legislation regarding telemedicine?
30:08 What is the current state of legislation regarding use of medical marijuana?
33:44 What are the best ways to get the government to increase research funding for Parkinson's?
36:59 As a person with Parkinson's disease, how do I communicate my ideas about what should be implemented in the National Plan to End Parkinson’s Act?
39:19 Can the federal government help to increase the number of movement disorder physicians in the country?
41:36 I'm a veteran and I would like to get involved in advocacy efforts for veterans. How can I do that?
43:18 Are there any efforts to get Medicare to pay for home care, long term care and nursing care?

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[steveaird]

Pesticides did not exist over 100 years ago when the first diagnosis was made by doctor Parkins for Parkinson's

[catherineadibuah]

Is PARDOPA --- 275 Levodopa BP 250 mg and Carbidopa BP 25 mg Tablet good for PD. I take it Every 8 hours 6 am, 2pm, and 10pm.That is what they give us in Nigeria. . I'm here for some time to go back February 2023.