Dr. Gilbert Hosts: A Discussion With Parkinson’s Care Partners

Being a care partner has its rewards and challenges. In episode of Dr. Gilbert Hosts spoke with Veronica, Greg, and Mario Sr. and Mario Jr.– four exceptional individuals who are care partners to people with Parkinson’s disease. They have a range of experiences at different stages of the disease and shared their stories and expertise with our audience.

They shared their insights on:
• Planning for PD over the long term
• Navigating the health care system
• Raising a family when your partner has PD
• Negotiating finances and employment
• Taking care of the care partner
• And more!

00:53 - Introduction of the guests

5:22 - How do i trade off between confronting my wife with her increasing cognitive difficulties and not bringing attention to her difficulties?

7:58 - i'm feeling more frustrated in my reactions to my husband's confusion. What are ways to react if I feel frustrated?

11:18 - What is the best way to deal with paranoia or hallucinations?

14:17 - How do you get a person with PD to exercise if they are reluctant to?

18:10 - We will be traveling next month by air - any tips to make travel easier?

20:43 - Do you find that certain personality characteristics are amplified in somebody with Parkinson's disease?

23:59 - At what point do you consider institutionalization - putting a loved one in a nursing home versus taking care of the loved one at home?

27:19 - Many people find themselves trying to be an advocate for their loved one when they are hospitalized - could you share some insights on this?

30:28 - Non-motor symptoms of PD that can be very problematic include anxiety, panic, and depression. How did you deal with these issues?

33:32 - What role do you play as a care partner at a doctor's visit?

38:55 - What is a movement disorders specialist?

40:55 - As PD advanced, did you talk with your Mom about end of life decisions?

42:51 - How do you balance your own responsibilities and needs with the needs of your loved one?

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[janaj]

I felt myself breathing out and out and out . .Thank you so much for everyone's candor in their experience. This is very helpful to have guides or helpers on this journey.

[kokokoko-ryih]

que tembukurr.beauty encantan tus videos. Bendiciones hermosa Celina que Dios te cuide donde quiera los mortalesd abian apreciado tan hermosa mujer