Paul's story - after a stem cell transplant

[orscrub]

my husband just had his allogenic stem cell transplant today for secondary plasma cell leukemia. please keep him in your prayers

[QPRLAD]

Today is my 16th year post Stem Cell Transplant I had my transplant at just 19 years old. Proud to be here the most important thing I learnt from having Cancer is ‘Perspective’

[markgarduno]

I'm on my first year after stemcell transplant and feeling better. Two years from first diagnose AML, but I wish the best to all those who are going through this. It's not easy, but you know what they say. Keep it positive and keep it going strong. ❤🙏

[DwansFamily]

So happy to see you doing well. My husband is going thru this currently. Very motivating to see you!

[Dwarfboy]

To anyone out there who’s going through this (or something similar) be brave, stay positive Never lose your sense of humour and plan something to do with your loved ones next year… it REALLY helps

My support network was constantly chatting with my family and mates about life the universe and anything else that came up
They were great and without them recovery would have been much harder

Well done Paul
Well done Paul’s family and friends

It’s a long road but
You’re getting there 😬

[LivFP]

I have a SCT in two days. Due to my Hodgkins Lymphoma not going away after 6 months ABVD + 10 sessions of radiation. Now I'm on GDP awaiting the transplant.
They're harvesting my own cells and reinfusing them 2 weeks later. So I'll be my own donor. That means there's a chance that some cancer cells make it back into my body during reinfusion and that scares me. The whole thing scares me really. I'm more afraid now than I was to receive chemo.
It's a daunting procedure but here's hoping it gets rid of my cancer for good.
Wish me luck.

[ZosiaSamosiaOo]

I've been registered as a potential donor for a few years now but never got a call so far. It's actually comforting to think my "genetic twin" as we call them here is healthy :) Although I must say this story was very uplifting and motivating. Great job.

[larrypedersen]

Good luck! I had a transplant in 2014.
Then my MDS came back in 2019.
So I had my second. It's been a year an 6 months .everything is good. I had a problem with my lungs .pneumonia. I'm on oxygen now. Hopefully I can kick this ass too.
Good luck in the future.

[chelseahulmston]

Today i got a letter to say im a match for someone needing a transplant. I registered 3 years ago and thought no more of it until today. I called DKMS who im registered with (and Anthony nolan) and they said im the best match so far and if i would be willing to do a blood test to see if im 100% compatible. I said yes. So tomorrow i do bloods. In 3 months we will have the results if im the one to save this feeling to know i potentially could save this unknown person

[alanclark]

i went through this in 2012.excellent to hear.

[newera]

Finally managed to get and send my sample today. Trying to get registered as a possible donor.
Got green light for donating blood just less than a year ago as well. Now at 30yo I'm doing my all to be as helpful as I can be.

[keyocurry]

I am about to have a stem cell transplant. I enjoyed your story! Hope your house renovation is going well or went well!

[donnasears]

Hi Paul . I would suggest wearing a mask so you are not breathing in all that dust, good luck on your health and your reno jobs. God Bless

[daydreamingagain]

How are you doing today Paul? I didn't get a BMT. I did go through the chemo induction + 5 more chemo sessions. I've been AML free since January 2015.

[johnnyblaze]

May God heal and protect all of you in Jesus name 🙏

[dascha]

Hello! Do you know where i can find an online self-help-group for patients with aml and stem cell transplantation?

[MnkeyWitAgun]

Got Hodgkin's lymphoma, mom had to drive me to sperm bank before my stem cell transplant (haven't gotten it yet) and it was pretty awkward

[johnnyblaze]

Venetoclax cured my mother of AML thank God!

[johnjones-syyb]

congrats,  I had a trans in 2011 for PNH disease.

[johnnyblaze]

Venetoclax 👊 look it up pass it on!!!!