Brain Tumors: Frequently Asked Questions | Jon Weingart, M.D.

Questions Answered:
1. What are the first steps for someone who has been diagnosed with a brain tumor? 0:04
2. What do you do if you can't immediately see your doctor? 1:20
3. What are the main types of brain tumors? 2:34
4. What should a patient expect after treatment? 5:49
5. Why should a person with a brain tumor come to Johns Hopkins? 7:50

[socialpollution]

I had a low grade astrocytoma in the bottom right side of my brain. I got it removed 1/26/21. After I woke up from my craniotomy, I had no control over the left side of my body, where the tumor was located was that part of my brain that had my muscles mapped, so them removing it has made me have to start doing physical/occupational therapy. I'm 24years old and walking with a cane and an AFO brace. If I've learned anything from this it's that life sucks, but don't take for granted the simple things you get to do that others can't. Life really is good when you look at it from that perspective. Hell, when I was in inpatient rehab, I was the youngest person on the whole floor. All the other patients were seniors mostly dealing with stroke rehab looking at this kid with 47 staples in his head like I was an alien from another planet.

[akuapiatas]

my wife had 90% of a meningioma removed and it's like doctors rewound the clock 20-years, she's awesome and recovered really well. We just hope what's left doesn't grow, or at least does so slowy

[harinim]

I am a proud Childhood Brain tumor survivor. Yo it's been 11 years since I made it 🤸‍♀ I am healthier Happier Stronger financially independent working taking care of family and everything.

[shyyy_cat]

I was diagnosed with a brain tumor about the size of a pea 6 years ago. The doctor didn't refer me to anyone for an evaluation of any sort. I was supposed to get another MRI 6 months later but didn't have the funds so I went without it for 6 years lol, but now I still haven't gotten any detailed results of my second MRI months after it was done. I still haven't been referred to anyone and I'm dealing with symptoms almost daily. My eye doctor can officially see I have a brain tumor through my eyes because my optic nerve is swollen. He's the only dr of mine that is concerned for my well-being and he told me I need to find a neurologist right away but I don't know if I need a referral or anything first

[lilshramp]

I was wondering if you could talk about the difference between a glioma brain tumor and lymphoma in the brain. Would you be able to determine the difference on an MRI?

[abrannan]

Well, the "being seen within 48 hours" has changed in the five years since this video. After receiving MRI results showing a glioma of some kind (2.5cm x 3.5cm x1.5cm), I called the hotline, and uploaded my MRI reports per the instructions, and was informed that the doctors would review the information and get back to me within 3-7 business days. I had sent an email yesterday asking if I provided enough information, or if more was needed, and have received no answer. My neurologist informed me that even after getting through to the doctors at Hopkins, it would likely be a month or more before they'd be able to see me. So the early parts of this video may need to be updated.

[studywithjoy]

I lose my brother in 2005. After his 1st operation he become normal but after 5year he again felt pain in his brain and he can't see clearly.. Doctor give medicine, tablets etc. But he can't improve. After some month doctor tell my farher without operation he never come back but the operation also risky difficult.. After 2nd operation he open his eyes for few moment and that's the last time😥 he was just 17 age. I miss you brother 💝i love u forever mom and dad also miss you.

[Foundingmother]

I had surgery for a méningioma tumor, which left me with permanent brain damage causing seizures. I was initially given Kepra to treat the seizures which I was allergic to, when I was finally switched to a neurologist who prescribed Lometrigene I now can tolerate a medication that works. However I now have a permanent seizure disorder from the surgery and never will go back to my previous life in full.
I had my surgery at a major hospital in Chicago performed by their top brain surgeon. My regret is that I did not get a second opinion.
After 30 years of headaches I was so anxious to get a correct diagnosis that I put all trust in the reputation of the medical center.

[karlhaese]

I was a professional musician who packed and carried extremely heavy sound equipment into and outa my VW Golf. Had no back problems. Then in 2009 fell on treadmill at gym (which stpped dead in its tracks whilst doing 10km/h hurtling my L leg into the sidebar). Had to quit gymming-pain was unbearable. On New Years Eve after a gig 100km from here I experienced COMPLETELY lower paralysis and had to use my hands to operate the pedals. Took me 3 hours to get back home at 50km/h. In 2012 in NL I was visiting my aunt when I woke with a completely paralyzed L leg. Took all the pain meds I had taken with to the local Dutch GP, who imnediately diagnosed MS and referred me to the AMC for a MRI. My travel insurance didn't cover this thus I had it perfomed a a year later-in fact two of them! Dean of Neurolgy at hospital said they'd found "unspecified white matter" on my brain "but the good news was it wasn't MS'. But what it was they couldnt establish. Two years later after I had been suffering excruciating L lower leg pain I went for a SONAR of my leg en was established that my bloodflow from hip tot knee was 1m/s vs 0.5n/sec below knee to foot, as opposed to normal R leg. Asked the radiologist (?) to check my L knee as well. Meniscus completely torn thru. Still suffer from that L leg with "voltage" like quivers which keep me awake. 12yrs down the line no GP could establish wat the cause is. The orthopedian at the same hospital where MRIs were performed says he sees no nerve impingment and differs in diagnosis of Neurologist that I in fact DO suffer from MS! That put, I only have one functioning kidney (R) due to nephritis when I was young. It's completely calcified. In 2018 I ejaculated 100% blood(!) instead of semen. The extremely rude locum at my GP refused to even examine it, as well as my very dark urine-dismissing it as reeking of nitrates. Did very sore rectal exam, called me neurotic obssive (really?) and sent me home with R570 bill. 4 years later still traces of blood in semen as well as now Leukosites. My currant GP told me to go for cystoscopy (which I stalled untill COVID was gone) Constant itch in ears, especially R hand one as well as blocked R nostril. L leg still producing enough electricity to supply Vegas. Finally found out a year ago that I can undergo a MRI using contrast dye since I went into anaphylactic shock in 1987 when they wanted to get to the origin of albumin in urine for my to pass my PPL and i injected Iodine. Turns out they now use Gadolanium. Anyone with similar situation?

[ladyV]

I was in an car accident and they found brain tumor. I been having problems with my vision blurred, bad headaches, weakness. For a couple of years it seems like I couldn't focus or had short term memory. I kept saying to myself that I am to young to be having Alzheimer's. I went to see an neurosurgeon and she told me that none of the symptoms were from the tumor. So she gave me a choice to either wait 6months then or get the surgery. I said wait 6months. But I went to my primary doctor and she told me No, don't wait before I lose my eye sight completely. Yes, I have lost 65% of my left Peripheral vision. So now I am waiting for the neurosurgeon to schedule my surgery.
What do you think is best?

[waterflawsnomdeguerre]

You say It's important to be evaluated at a center that has a lot of experience with these things. How do I know, and, what about insurance ? I'm a Kaiser member, in the Denver market. Kaiser says When I asked to be assigned a specialist in neurological tumors, I was told ALL their oncologists are trained to handle ANY type of cance! rAn oncologist is scheduled to review the pathology the day after tomorrow. I have contacted MDAnderson, at the suggestion of family members who KNOW people who've hsd successful brain tumor treatment through them, but all they have been concerned about (so far) is whether my insurance will pay for treatment.

[galaxydancestudios]

im watching this for school studies and i wanna be a brain surgeon

[vanessaprice]

Thankyou for your information. Please let us know how many patients you have successfully treated with a Pineoblastoma.

[arjunpatil]

I get dizziness due to spasms in the head muscles, is there any treatment for that?

[perillamaymaymae]

hi good evening doc im from philippines but im working here in saudi arabia as a domestic helper im 28yrs old. last week i diagnosed a brain tumor and told me thats its too small... and thats really makes me sad because im thinking of my 3 children because im a single mother.. my vision in my left eye is affected the neuro surgeon suggest for an surgery. is there any options doc?

[المستشار.محمدسيفالجلال]

Hallo Doctor
What happens if I stop a week between radiation sessions to treat begin tumor in the brain
Thank you

[allanwilson]

Morning,
My brother was diagnosed with a brain tumor 12-17-2021. The doctors told him where the tumor was located. The tumor can't be removed or be biopsy because It's to risky. The doctors told my brother the tumor located where the brain and spine are together. My question is can my brother live a normal life with the tumor where It's location is

[kyresselewis]

Can you tell me if this is a tumor all.of a sudden I'm studdering on certain words feel like I cant speak sometimes but I have no other symptoms and never had speech problems all the way through high school I'm 19

[kyresselewis]

So I got a ct scan and there was nothing on It can you tell me the chances of this scan missing a tumor or brain damage

[Oze]

Question doc I had free 3 astrocytoma malignant removed oct 27 did 6 weeks Reddition with temodsr I just finished my last treatment on 1/19 and off for 6 weeks til I start chemo again. This past week I’ve been feeling shaky and nervous is this normal? I know it takes weeks to recover from the radiation effects but i felt more like myself minus the fatigue while I doing radiation:. Also have mild headaches and slight confusion in public places