Hospice Care for Dementia 💖🧠

Welcome to the place where I share dementia tips, strategies, and information for family members caring for a loved one with any type of dementia (such as Alzheimer's disease, Lewy Body dementia, vascular dementia, frontotemporal dementia, etc.) Every Sunday, I share a video to help you in your dementia caregiving journey.

In today’s video, I talk about 8 hospice care myths. So many people misunderstand what hospice means and because of that may be missing out on one of the most helpful things for their loved ones. Learn about these 8 myths and decide whether hospice is something you should bring up with your loved one’s doctor.
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In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
#careblazer #dementia #dementiacaregiver

[nanolight]

Hospice care trained me the unrecognizable daughter now untrained nurse aide in my livingroom. Hospice staff taught me how to do what I had no skills to do. I was a computer programmer not a nurse! Thank God for the support friendship and excellent care. Our family could not afford 6, 500$ a month in OK for a nursing home. Hospice helpedme help mom to end of life and berievement counceling for me for a yr after. Thank you so much to hospice!!!

[MarysMaamCave]

I was a Hospice RN in the 90s and the one thing I kept hearing was, "We just wished we had signed up much sooner!" Hospice can help with so much and save the family and the patient a lot of money and stress.

[paulawhalen]

I was a hospice nurse for many years. It was the most rewarding of my 30 year nursing career. I had many dementia patients. Most of our patients were at home and only went inpatient at the very end though not always. Hospice is a wonderful provider for the patient and loved ones. I had patients on hospice for well over 3 years. They only need to be showing a decline.

[robinjames]

For me, Hospice care gave me the opportunity to be a daughter instead of a care giver. I just let the hospice team know of a health issue and they take care of it. I get to enjoy the time I have with my mother. Thank goodness for my team.

[jeanostrom]

My husband was on hospice for 3 1/2 years. I truly believe he lived that long because of the amazing people at hospice. They are there to make life as good as possible for the patient, and are so miuch help for the caregiver. I tell anyone who is caring for a loved one to get them on hospice as soon as they qualify.

[barbaradavidson]

My brother died with he had lewey body dementia and hospice was great with him, thanks for the video

[verliehorton]

Hospice care is a great for my husband and me. Being the caregiver, hospice care has helped to relieve a lot of pressure off me. I'm grateful to have for them.

[janingram]

Just last week I asked for hospice information from our local Council on Aging. This gives me a lot more information and confirms that I need to start with Mom's PCP. Thanks!

[_JanetLouise]

My husband was moved from the 'hospital' to a 'skilled nursing facility / veterans home' in 2020. After two weeks we brought him home to be on hospice care. Shortly thereafter many of the facility patients died 'of covid'. My husband graduated from hospice after one year! We were blessed with an Amazing Nurse! I don't have a lot of good things to say about the rest of the hospice team.... My husband is currently on 'VA Home Health' and has a wonderful female Nurse and the beat goes on ....

[jamalsimmons]

You are mesmerizing. I could watch you giving a dissertation on photosynthesis and still be captivated!

[samwyz]

I was able to put my aunt in hospice after she fell and broke her upper femur. Her dementia did not respond well with the pain, morphine and anesthesia and she went down hill very fast. I wanted her in home hospice but they would only come once or twice a week. Being alone and having no help I was able to have her in one of their facilities. They gave her real good care and made her as comfortable as possible. She passed away on the 5th day. She went from walking well and doing things to her fall, surgery and passing in 12 days.

[rachelnadeau]

We tried to get hospice care for our mother a few years ago. They said they couldn't help because she had dementia and only help people who had only 6 months to live. There is little help for people living in rural areas.

[forestpkguy]

Hospice is amazing not always a death sentence. My mom was on hospice 2 1/2 years here at home they where a godsend.

[tommasinibafford]

Thank you for explaining that. I had to break that down to people numerous of times.

[carolbenson]

I used to help patients at home with other caregivers, and was concerned about Hospice also coming in to the home because their pprotocol seemed to be giving the patient morphine for pain relief, even when I never witnessed any pain that the patient might have had. Seen it many times...then the patient passed away shortly after the pain meds were given.

[wendytaylor]

You are so correct on this issue. Really, what you tell us is critical as we find our loved ones lose more and more.

[ChaptersHealth]

Thank you for this video and dispelling hospice myths!

[juanitacrump]

Thank you for clearing this up for me as a caregiver

[nancyschaefer]

My husband has been in assisted living memory care for about one month. During that time he has stopped eating even though they have tried everything to interest him in food and he has lost over 10 pounds. He will be seen by Hospice to support his care and the facility explained he could get help and stabilize and be off of Hospice care.

[patriciastarkey]

My husband was in Hospice for 11 months. They kept his PCP and his neurologist since he had a condition they never heard of. He kept slowly deteriorating over time.