Some things to expect from Alzheimer's and Hospice Care

Here are three things you can expect from Alzheimer's and Hospice Care! This clip from the recent Alzheimer's dementia video goes more into depth about Alzheimer's and Hospice.

In this video on What to Expect with Hospice Nurse Julie, we talk about Alzheimer's Dementia and the different progressions that we are able to observe including the difficulty of Alzheimer's Dementia. Often times with Alzheimer's, it could be a long time before a patient is in Hospice Care and that can be a frustrating, difficult, and stressful time for the family. I hope this video gives you insight into what to expect from Alzheimer's Dementia and Hospice Care.

I love to hear your thoughts and look forward to the ongoing conversation around hospice care and education around end of life practices.

When dealing with any medically related events or medical emergencies, please communicate with your primary health care provider.

[maryc]

My mother has schizophrenia, bipolar, and dementia. She lives with me. It’s very hard but it’s rewarding.

[Amy-scsw]

Hospice Nurse Amy, here, and love Hospice Nurse Julie! I show your teaching to my families because our culture does not have death and dying as a Normal Part of the Circle of Life.

Thank you for your teachings!!!

❤️💕❤️💕

[ceilconstante]

I urge people to learn about the signs of Alzheimer's. It's very frightening and confusing for people developing it. They think they're loosing their marbles then the next day they may feel normal. It's very important to be patient and not make a big deal about things they're not on target with.

[cemetarygates]

A noble thing you're doing here Julie.

[mnmom]

My Mom has Dementia and all I do is cry after I see her bc I miss my Mommy! I’m 51

[sanfordpress]

These videos are so important. Thank you so much

[chino]

I wish I had known more about hospice care before my mom passed away in a nursing home.

[maragreentrees]

This is an awful disease. If I have symptoms, I will take action.

[ginytucker]

Tysm, Julie.. Our mother showed signs of Alzheimer's at just 59 yrs old and it lasted for 17 yrs..She had no UTI's or bed sores.. She died of heart attack very suddenly..

[cheleski]

M’y dad passed in my arms Thursday. Because of your videos I was empowered and had the last moment with him before release. He chose me . Your videos are a God send. Thank you. By the way…UTIs consumed his body in the end. I don’t think they ever started that last round of antibiotic last Monday….he was in hospice a week before the end.

[kimpisarcik]

I really appreciate the information that you share. My parents are getting elderly and this is good information to keep in the back of my mind. I appreciate it. Thank you.

[justlittleoldme]

It is one of the worst things ever. My mum started to collapse for no reason which I was informed was quite common. From there it was down hill. Yeah she got UTI at the end because she wasn't passing water enough. I felt sorry for the doctor who came out to see her and pronounce palitive care because he was back a few hours later to pronounce death. He said it had never happened to him before.

[sanfordpress]

Death with dignity. We should not have to go the distance with this

[jenniferv]

My dad had vascular dementia. We also believe he had a mini stroke in he declined fairly quick. From that night if the stroke, he started wearing briefs. He wanted no part of diapers but I had to convince him.. within months he could no longer swallow so we had a feeding tube placed. He went from walking & working as a certified master mechanic to being bedbound within a year. It was shocking..

[NotJessH]

My grandfather had early onset Alzheimer’s. My grandmother had dementia. I lived with and cared for them when I graduated from college, by that time they were unable to care for themselves and had been robbed by a caregiver the family hired.
My grandfather was much worse off than my grandmother. We thought he was just tired and having a bad couple of days because he was sleeping a lot. I left the house to get his favorite breakfast down the street and was gone for 10 minutes. In that time, he had gotten up to take his dog out for a walk to go potty and collapsed. Luckily a neighbor was out too and saw him and called 911 immediately. He died that night. He’d been having minor heart attacks for those two days he was sleeping a lot. It’s been 8 years and I still blame myself for not forcing him to go to the doctor the first day he wasn’t himself.

[Marie-hfqf]

I am not a nurse, a family came to me asking if I would be their sister caretaker. She only raised her hand to me once, looked directly into my eyes, laughed, never did it again. I discovered that she loved bluegrass country music. I could get her singing, how interesting it was that she could sing yet lost her ability to communicate, didn’t recognize her kids. Remembered her dogs name, sometimes she would see a old boyfriend that had died, she would mumble, that’s it, she couldn’t walk, she was in diapers, but, after 4 years, I have to say, that was the hardest job I had ever had, cooking, cleaning, baths, she was taller than me, lifting her in the tub nearly broke my back. She would just stare at me, giggle and pat me on the leg. I worked 14-15 hours per day 7 days per week, for four years, , she got the best care, love, good meals. At the end she couldn’t remember how to chew, I told the family that I can’t go on any further, I think her boys came by once, another boy had been there 3 or four times. I told her children it was time for a more professional care, she never had bedsores. The family took her to the hospital who didn’t feed, or give fluids. As I write this some memories come to me, Bonnie loved the song, she’ll be coming around the mountain . Alzheimer’s. Is the cruelest disease. I understand it and have great compassion for anyone who suffers it. I loved Bonnie and she was fond of me. Good friendship developed.I guess, I never knew Bonnie, she died in her 80’s. More must be done about this evil disease..

[detroitdiggler]

Your a good person. I am 39 with recurring nueroendocrine tumors on the 60% of what remains of my pancreas. Drs have said they want to remove it completely.

I have no illusions as to what this means.

I hope that i have the opportunity to have a nurse as articulate and compassionate as you when my time comes.

[vultureculture]

I think people with illnesses like that should have the right to PAS immediately after their official diagnosis.

[sazfretz]

Thank God my dad only had to suffer from Alzheimer's for seven years. He died from a broken heart a few weeks after my mom died.

[Rebecca-]

Oh boy. My mom gets frequent UTI's and recently having a weird, strange, twisted story thats far out and she believes. Its a definite hallucination. She is getting more angry.i moved her in with me years ago. She is very and i mean very scared of Dr's. My hubby is a nurse and can see it. I was a CNA for years and see some. I took care of my Dad with it until he passed. I can do this. Stage 3 metastatic thyroid cancer with BRAFV600E mutation. And a son with autism. I was made for this. My daughter and older son help of course my hubby.