Geoff's story: Living well with mantle cell lymphoma (MCL)

Join Geoff as he shares his experience of living with mantle cell lymphoma (MLL). Geoff loves staying fit and is feeling great and keen to reach his goal of getting to 100 years old, just 39 years to go!

The Leukaemia Foundation is there to support people, like Wayne, with blood cancer and help them navigate that journey.

Remember, discussing treatment options for CLL with your haematologist is important to ensure you are on a treatment plan that works best for you. If you’re starting a new treatment plan it’s important to find a way that works for you to build a habit and stay compliant with treatment protocols – a diary, checklist, time of day – all help to keep you on track.

[hazeloveu]

I’m an MCL survivor. Hats off to you! Here’s to a long life.

[nightly]

Great video! Get in there and kick ass!

[yvesklein]

Geoff you give me hope. are you still with us? because nobody will help me with my third recurrence of MCL and I am dying in Houston without care. The drug that was tested on my body, Ibrutinib (I was in the trials) is being withheld from Lilly because my insurance won't pay for it. This is outrageous: Lilly used me in a study and won't give me the drug now as a clinical patient. If you have any advice, I'd be grateful. I live in Houston, where MD Anderson Cancer Center has shunned me. they won't even answer my emails. it is outrageous.

[macmad]

What an inspiration to others, i am typing this in my hospital bed after being diagnosed with mantle cell lymphoma, i start chemo in around 4 hours, and there are some new developed drugs available which will be administered.
With cancer you always need to stay positive, look forward to the future and plan things, i had some strange symptoms, itchy skin, leg cramps, then night sweats, but it was only when i started to lose weight, and a massively enlarged spleen i acted, i guess the original symptoms started about 14 months prior, but only seek treatment 3 months ago and was seen by the NHS here in the UK, having had a cat scan i was not informed of my results, and 21 days later i asked my GP if the results are back, i remember it quite clearly, he said no one has spoken to you ? you don't know?...
He told me to see a haematologist ASAP, fortunately i have private health care through my work, and i put a desperate email together to 4 consultants here in London, one came back to me and see me later that evening, i was shell shocked at the time, but never lost the will to fight, i then had a PET scan and a biopsy of the lymph node in my neck within 4 days,
I had to wait around 12 days for the biopsy results, it was confirmed as Lymphoma, then several days later had the full diagnosis as Mantle B Cell Lymphoma, it was explained it's a rare form of Lymphoma, and is very aggressive, i am now in London Bridge Hospital awaiting my treatment, anyone out there with this horrific disease and any other cancer, stay positive, advancements in treatments are continuing all the time, hope you reach that amazing milestone Geoff, stay safe everyone, Darren.