WHAT IS ALD? Adrenoleukodystrophy explained.

Показать описание

What is ALD?
Adrenoleukodystrophy is a devastating genetic disease that affects the myelin around neurons in the brain and spinal cord.
Learn the biology underlying the disease and what potential treatments may come from ALD research.

Рекомендации по теме

Комментарии

My father's side of the family had ALD, he was the only boy who did not have it. He had to watch his brothers degenerate with no treatment or cure, not knowing if the same would happen to him. Amazing video, and thank you so much for educating people and raising awareness about this disease. Thank you.

hannahl

My grandpa had this disease he was my step grandfather he raised me I watch him fall apart it broke my heart

jimothyasteward

That was a great explanation! I have the AMN version, and my younger brother passed in 2010 from the cerebral version. Devastating disease. I wish they'd hurry up with the gene therapy!

rickz

What a fantastic video - well done to all concerned and thanks so much for advancing the fight to stop these disorders. Sara, ALD Life

ALDLifeCommunity

I've never commented on a video before, but may I say that this was a very well done video. Explanations were very thorough while still making sense. Also being a visual learner, the drawings were very helpful! Thank you!

stevenhernandez

I'm in the medical school and this video help a lot to understando better this disease.
Thanks a lot! Keep going withs this beautiful work, information should be for all.

dodaporto

Awesome video on ALD. Great tool to use for family members and friends to help educate on how disease exists, as well as in helping pass Newborn Screening in the U.S.

ginacousineau

Was diagnosed a few years ago. Had trouble 2alking at age 45 now 62. Used a cane for years and did wall walk8ng. Then to a walker now in a wheelchair. Seems like some symptoms came on overnight. One day I could walk and the next had a lot of trouble. My legs are gone can't stand or get into my chair or on the bed my son helps. No pa8n and my arms and eyes are fine. My other son told me about age 27 he's now 34 he thinks he had what I have. He had trouble walking couldn't play basketball anymore. He went to a doc who recommended genetic testing found we both have it. I'd like to improve my legs with working out but think it's a waste of time.

rosemaryparker

Great work. This video helps alot in understanding the disease

dr.qaisarjan

Excellent video, very well organized. Thank you!

zachfalk

I have this was genetically tested. Started when I was 45 or so. Trouble walking. Now have no balance use a wheelchair. My 32 yr son has it now to.

rosemaryparker

I feel very blessed, for I have Adrenal Insufficiency, and it seems to be the least devastating of them all. I have a question though, I had my BM transplant when i was around 2 or 3 in 2007, and ever since then, I have had an abnormal hair quality. It looks like it is very thin, and or looks like I have way under the average "amount" of hair. I have enough to cover my head, but it looks like just several strands spread out across my scalp. I recieve some bullying over it, so I would like to know why it might be like this and if I can fix it. Thank you.

fallencaptain

Love this video! Thanks, it really helped me with my Biology Assignment. :)

lilypearson

im here cuz ya boi had ALD, was treated in 04 . but the thought of AMN scares tf out of me ;(

PYROFREAK

I have ALD Cerebral, Addisons, ect., When I tried to explain this x linked trait to my mother and her daughter (who has three boys), I was accused of blaming my mother for my illness and banished from the family. That was 10 years ago, I wonder how they are.

blackbeard