ALD Alliance

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Hear about the mission of the ALD Alliance (formerly Aidan Jack Seeger Foundation) in 60 seconds. ALD is the abbreviation for adrenoleukodystrophy.
  1. ALD Alliance
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ALD Alliance 0:01:14

ALD Alliance

Welcome & ALD 0:06:02

Welcome & ALD Alliance Overview - Seeger

01 - Opening 0:04:52

01 - Opening Remarks from Elisa Seeger (Founder of the ALD Alliance)

2022 Session One 0:12:56

2022 Session One | Legislative Updates from Miranda McAuliffe, ALD Alliance

Elissa Seeger, founder 0:24:48

Elissa Seeger, founder of the ALD ALLIANCE (NY)

28 - Closing 0:01:33

28 - Closing Remarks by Elisa Seeger (Founder, ALD Alliance)

ALD Standards of 0:29:24

ALD Standards of Care: AMN Patients - Raymond

'Professionals of America' 0:24:35

'Professionals of America' exclusive interview with Elissa Seeger, Founder of ALD ALLIANCE

16 - Newborn 0:49:16

16 - Newborn Screening & Legislative Updates by Miranda McAuliffe (Director, ALD Alliance)

Virtual Town Hall: 1:03:26

Virtual Town Hall: Gene Therapy Treatment for childhood cerebral Adrenoleukodystrophy (ALD)

July 2023 Update: 1:00:01

July 2023 Update: Gene Therapy Treatment for childhood cerebral Adrenoleukodystrophy (ALD) Town Hall

ALD Standards of 0:40:43

ALD Standards of Care: Pediatric Endocrinology - Regelmann

SESSION 1 | 0:32:41

SESSION 1 | ALD Newborn Screening Roundtable Update Michele Caggana, ScD, FACMG -NYS Dept. of Health

ALD Newborn Screening: 0:13:09

ALD Newborn Screening: Parent Perspective - Wilson

15 - Day 0:01:28

15 - Day 1 Closing Remarks by Elisa Seeger (Founder, ALD Alliance)

Upcoming Multinational Clinical 0:17:03

Upcoming Multinational Clinical Trial of Leriglitazone in Adult Cerebral ALD - Fatemi

ALD Newborn Screening 0:23:52

ALD Newborn Screening & Legislative Updates - McAuliffe

Neurocognitive and Mental 0:31:10

Neurocognitive and Mental Health Impact of ALD Cross the Lifespan - Pierpont

Newborn Screening State 0:11:59

Newborn Screening State Experience: Arizona - Altmaier

Elissa Seeger- Fonder 0:24:35

Elissa Seeger- Fonder of the ALD Alliance

24 - Speaking 0:28:49

24 - Speaking to Extended Family:Tough Topics in ALD by Amy Gaviglio (MS, CGC) Connetics Consulting

Balancing the Risks 1:42:13

Balancing the Risks of Transplant vs Gene Therapy - Duncan & Lund

23 - ALD 0:33:38

23 - ALD CHOP Newborn Screening Follow Up Model by Dr. Laura Adang (CHOP)

Effects of Vitamin 0:56:09

Effects of Vitamin D in ALD - Van Haren