filmov
tv
ALD Alliance
Показать описание
Hear about the mission of the ALD Alliance (formerly Aidan Jack Seeger Foundation) in 60 seconds. ALD is the abbreviation for adrenoleukodystrophy.
ALD Alliance
Рекомендации по теме
0:01:14
ALD Alliance
0:06:02
Welcome & ALD Alliance Overview - Seeger
0:04:52
01 - Opening Remarks from Elisa Seeger (Founder of the ALD Alliance)
0:12:56
2022 Session One | Legislative Updates from Miranda McAuliffe, ALD Alliance
0:24:48
Elissa Seeger, founder of the ALD ALLIANCE (NY)
0:01:33
28 - Closing Remarks by Elisa Seeger (Founder, ALD Alliance)
0:29:24
ALD Standards of Care: AMN Patients - Raymond
0:24:35
'Professionals of America' exclusive interview with Elissa Seeger, Founder of ALD ALLIANCE
0:49:16
16 - Newborn Screening & Legislative Updates by Miranda McAuliffe (Director, ALD Alliance)
1:03:26
Virtual Town Hall: Gene Therapy Treatment for childhood cerebral Adrenoleukodystrophy (ALD)
1:00:01
July 2023 Update: Gene Therapy Treatment for childhood cerebral Adrenoleukodystrophy (ALD) Town Hall
0:40:43
ALD Standards of Care: Pediatric Endocrinology - Regelmann
0:32:41
SESSION 1 | ALD Newborn Screening Roundtable Update Michele Caggana, ScD, FACMG -NYS Dept. of Health
0:13:09
ALD Newborn Screening: Parent Perspective - Wilson
0:01:28
15 - Day 1 Closing Remarks by Elisa Seeger (Founder, ALD Alliance)
0:17:03
Upcoming Multinational Clinical Trial of Leriglitazone in Adult Cerebral ALD - Fatemi
0:23:52
ALD Newborn Screening & Legislative Updates - McAuliffe
0:31:10
Neurocognitive and Mental Health Impact of ALD Cross the Lifespan - Pierpont
0:11:59
Newborn Screening State Experience: Arizona - Altmaier
0:24:35
Elissa Seeger- Fonder of the ALD Alliance
0:28:49
24 - Speaking to Extended Family:Tough Topics in ALD by Amy Gaviglio (MS, CGC) Connetics Consulting
1:42:13
Balancing the Risks of Transplant vs Gene Therapy - Duncan & Lund
0:33:38
23 - ALD CHOP Newborn Screening Follow Up Model by Dr. Laura Adang (CHOP)
0:56:09
Effects of Vitamin D in ALD - Van Haren