Brett's ALD story: Preparing for the future

Brett is an army veteran who developed the symptoms of adrenoleukodystrophy (ALD) when he was a young man.

In an interview with Raremark, Brett shared his diagnosis story and his advice for others who have received a diagnosis of ALD.

[katec]

My boyfriend has ALD and I’m willing to do whatever it takes to help him. I’m going to take this man’s advice and prepare for whatever we need

[blackbeard]

im impressed that youre still doing it, good for you. youre a champ

[lessthanrich]

wheelchair is sign of emotional strength. not a sign of weakness, i use one.

[torimathis]

I was recently diagnosed after a many years of being told my symptoms were all separate dignoises. I'm still processing this whole thing and don't even know the correct way to pronounce the word.

[jana.]

Do you know of any adults that has had the bone marrow transplant and is doing at least okay afterwards or able to carry on a regular life? My brother was recently diagnosed and he is 42 years old. Our only chance is the bone marrow transplant, but we are so afraid of the risks.

[joesuarez]

my two sons have ALD one of my sons had bone marrow transplant in 2005 the old one has it in his blood its been hard on family my wife a carrier and her sisters Are two .

[nirmalavasagadekar]

Hii i am from India my brother is suffering from x-linked ALD he is 10 years old.please tell mi their is any treatment available for this disease pls I need a help 🙏🙏