Late Effects of LCH - Dr. K. Scott Baker, MD

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Dr. Baker discusses the late effects/long term side effects of LCH and its treatment as well as any learning or behavioral issues that may arise.

Questions:
What type of late effects can occur with LCH?
What are the late effects of treatment?
What are the learning/cognitive/behavioral issues of diseases?
What are the learning/cognitive/behavioral issues of treatment?
  1. Histiocytosis Association
  2. Histiocytosis (Disease Or Medical Condition)
  3. Langerhans Cell Histiocytosis (Disease Or Medical Condition)
  4. Histiocytosis Association
  5. LCH
  6. Late effects of langerhans cell histiocytosis
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my 10 year old just recently got diagnosed with LCH, and this video has been very informative

tankgirlsc
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My son Cruz was diagnosed with LCH at 10 months old. He then developed DI as a side effect of LCH at onset. My son went thru 4 year long chemo treatments and the 5th round was 2 years long. He has now been in remission for a little over 4 years. He is doing well but is now dealing with late effect of delayed growth. He is 13 now and bone age has him at 11 still. He has been getting a daily shot of Nutropin growth hormone injection for a year. He is growing but very slow rate. Has still not hit puberty and this all worries me a great deal. I'm scared that he will never reach puberty or grow much bigger. Anyone else know and statistics on the growth after LCH? And will his DI ever go away?

OfficialFragile
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