Connective tissue disorder

#eds #connective #tissue #disease

✍️Dr. Matthew Harb talks about hypermobility syndrome and eds

👨‍⚕️Orthopedic Hip and Knee Surgeon
📍Located in Washington DC, and Maryland
📚Education and Insight
🛠Minimally invasive, outpatient, hip and knee replacement surgery

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✍️QUESTION — Have a question or comment about medicine, orthopedic surgery, or musculoskeletal conditions. Post in the comment sections and let me know!

Dr. Matthew Harb specializes in minimally invasive, muscle sparing, hip and knee replacement surgery. Minimally invasive surgery allows patients to recover faster and have less pain post operatively. Implants are tailored and custom fit to each patient to allow for improved performance. Dr. Harb’s expertise in rapid recovery protocols allow for quick recovery after surgery and excellent outcomes in patients with hip and knee arthritis. With minimally invasive, muscle sparing surgery patients can return to their lifestyles and get back to doing the things they love sooner. Dr. Harb performs outpatient joint replacement surgery with many of his patients walking independently and going home the day of surgery.

“My focus is excellence in patient care, expedited recovery after surgery, and getting people back to the normal activities they love. Our team focused approach is committed to superb outcomes, improving lives, and returning patients to living pain free.”

[heatherstone]

EDS life for me. It's the worst because I'm constantly getting comments like "but you don't look disabled "

[XxheymoonxX]

My partner has this and it’s incredibly hard for him, not only is his skin incredibly stretchy but indeed his joints are able to dislocate very easily. There’s times where he literally just wakes up and has dislocated finger or joint from the way he slept. It’s terrible to see the pain he goes through. I never really knew of this disease until him, so I think spreading awareness is great. It truly affects his every day life, and overall quality of life. I wish I could take the pain away from my baby 😢

[tea_lex]

It's nice seeing others being awareness to EDS. It's also nice seeing another person with EDS that has a port, I don't feel as alone.

[hitsuchan]

I met a stranger who has this, she was crying and looked in pain. We asked if she was okay. She told us about this condition. whenever this happened to her she will tear up coz it is so dang painful and she has to put it back into the socket. She told us one of her bestie actually said to her face that she’s acting out and over react as she will tear up everytime this happens. She tried not to cry and hide her pain whenever this happened, she scared people will judge her. Dang. Thank you for sharing this. 😢

[bekahbarnes]

I have fibromyalgia and i cannot imagine this pain my god thats crazy :( the amount of pain people go through without ever knowing just by looking at them this past year has shown me how strong and resilient people are it givws me faith to see others fighting too ;( were not alone

[catweekly]

First time I have seen anyone mention EDS on a video. Thanks

[AddieStamey-drzh]

I have EDS and it’s so nice to no I’m not alone with all the problems I have and all the pain ❤

[glamreaper]

I have it. And I can't get a single doctor (besides the Ortho surgeon who diagnosed me) to take me seriously or give me proper care. They all act like I'm lying. It's hell.

[melodierosejoubert]

So many more people are talking about EDS and POTS. I love it. Shout out to my fellow Zebras!

[bernicel]

It's so difficult to have EDS, in my country there was only one doctor who is diagnosing people like us .
I'm 44 years old and I can't even walk to the supermarket 100 meters away and besides my husband everyone thinks I'm just complaining cause I look healthy.
It's depressing not to be able to have a normal night sleep etc. Thank you for sharing this.
It's nice to know not to be the only one . ( sorry for my poor English)

[STRAIGHTJXCKET]

I have EDS. The chronic muscle fatigue and bone pain is exhausting

[tly]

I was diagnosed with EDS in 1986 before anyone had really heard of it. It's absolute misery but it's misunderstood, so a lot of doctors think it's hypochondria and we get treated like crap. If you know someone with EDS, give them a gentle hug. They've been living through hell.

[deborahmcdonald]

You have my sympathy because as a nurse I see this debilitating disease. The constant pain and dislocation of joints is unbearable

[AlexisRoark]

I've given birth three times with no anesthesia. My children were 9lbs 4 oz, 8lbs 4 oz, and 9lbs 10oz. Know what? My shoulder dislocation was, hands down, the worst effing pain I've felt in my life. That sh!t hurts!

[wowieitssam]

Never tested for eds but I have hypermobility syndrome, a "cousin" syndrome to it. Was dismissed by doctors for years and looked at funny by classmates and teachers for sitting out of gym when I was finally diagnosed. Glad to be out of high school. Still, I'm hesitant to tell people when I'm in pain since I look very normal/like I'm using it as a dramatic excuse.

[nicolefallwell]

My sister (32) was recently diagnosed with this. And I have to say, after researching it, it explained so much of the problems she’s had over the years!!

[MelloTheMoon]

The comments to this reassure me I'm not alone in my struggle

[kellydavis]

I get overly excited whenever I see something for or about EDS because it’s nice to feel seen and less lonely

[carolhewett]

I was finally diagnosed with this after years of other diagnosis. I spent years on narcotics till i had 4 joint replacements and spinal surgery. Worse than the pain and surgeries was the fact no family members believed I had problems even after the surgeries. I was even denied disability benefits. This disease like rheumatoid arthritis is indeed the "invisable" disease.

[gamergirl]

I have a very minor case of this thank goodness. But it does make joint injuries more common and explained a lot of things growing up