Mixed Connective Tissue Disease - CRASH! Medical Review Series

(Disclaimer: The medical information contained herein is intended for physician medical licensing exam review purposes only, and are not intended for diagnosis of any illness. If you think you may be suffering from any medical condition, you should consult your physician or seek immediate medical attention.)

[CrookBrown]

My mom had this and just passed away yesterday but she live 67 beautiful years!!!

[Katietrezak]

I have MCTD overlap. SLE Lupus and SJORGRENS!! I've waited 43 years for my diagnosis. Your video was like someone reading my entire life story!! I have confirmed diagnosis of all these with medical records to prove this. I have Rynaud ! I'm having a horrible time trying to find a doctor in my state of Indiana. Would you consider contacting me?!

[ROMYONRARE]

Symptoms are so so similar. I was misdiagnosed with Lupus, but have Amyopathic DM. WHAT ABOUT.about an ANA TEST?

[gretchen]

I just wanted to point out that Methotrexate is on this list in the video but that should be held off on in MCTD, as it can induce lung fibrosis- which MCTD patients are in the 50% bracket of having. Granted if the Dr thinks the patient is more of a lupus symptom dominant case, or after monitoring for some time they feel less likely to develop, and the potential benefit outweighs the risk then it would be given. There are MCTD patients on it who respond well - just should be kept in mind. Leflunomide is another potential lung fibrosis inducer. Of course the fun part: rituximab and cyclophosphamide can both be given to treat the fibrosing lung disease but also run a risk of inducing it. Those aren’t first line meds anyway though unless really aggressive presentation- which in the case of MCTD probably includes lung disease.

[mia]

What if you want to go the natural route and not take medications???

[DannaK]

My oldest daughter was recently diagnosed with Small Fiber Nerve Neropathy. She complains of total over body pain and feeling like she has the flu. She's going to another RA doctor for a second opinion. I've been dealing with RA for years and only been diagnosed with fibromyalgia. I have Raynauds Disease and pretty much ALL the symptoms of Lupus, but haven't been diagnosed with it.

[DJ-nkdq]

I thought the ‘overlap’ has been substituted for ‘mixed’, however if U1-RNP has to be present in order for it to be ‘mixed’, how to do we classify the ones without this AB? Thank you

[drewosgood]

Please clarify: for the Raynaud part, do you take a calcium supplement of stay away from calcium? thanks

[latoyaweldon]

My ana and rnp positive started plaquenil and steroids. Bad rash upper body and shoulder hurts so bad I hate it. Another appointment on tuesday.

[amsushrestha]

Thankyou for the video
want more content about this topic

[Katietrezak]

I've taken Immuran and Plaqunil. My labs show high inflammation. Protein in urine.

[salzburg]

Are you able to accept patients from the UK?

[AB-ijql]

You know whats soooo funny. Is you talk about all these symptoms but all rheumatologist care about is joints. Then getting u on biologics, steroids more steroids, Hydroxychloroquine ( which isnt to bad) and send you on your way. No doctors are doing what is talked about in this expert videos.
I would sit there like okay i know my joints but what about ALL the other very severe issues. The attacks the flare ups from hell. Just laying there - nothing takes the pain away.
I learned how to deal through meditation/ Qi Gong/ Tai Chi/ how to stop the secondary reaction from making the initial attack worse.
Normal doctors/ rheumatologist really have no idea whats going on in the patients body. Even when you get a true like quadruple tested positive anas snd anti U1 rnp. Have all clinical symptoms. Its honestly sad how us patients with MTCD get treated. And they dont look for other genetic issues that could also be contributing.
My theory is MCTD is from other connective tissue genetic mutations causing the immune system to start attacking the faulty connective tissue usually in collagen genes.

[mashalazhar]

Proton pump inhibitors should be given

[essieyess]

is this high top medicine??? we just treat
woooow what a solution for people!!

[Katietrezak]

Red puffy swollen hands/fingers w pitting. I smile my face shakes. I have protein in my urine. I burn under 5 minutes in the sun. My teeth are falling out. My face has a red wash with broken capillaries. My skin and scalp hurt so bad. I've had a colostomy. 2 ventral hernia Surgeries. 3 surgeries for a non union of left humerus. AVN
I've had bone and skim grafting. Tissue death. Diabetes, irregular heart beat with high blood pressure. I'll provide you with ANY medical records pictures videos and my dozen doctors information. I live in Indiana near Chicago. I sleep constantly during the day. I've spent my entire life in bed or at doctors being told I'm crazy or seeking attention. My iron is constantly low so is my body temperature. It took me 8 months in wound care and 4 months of 3x a week IV antibiotic infusions to heal after my bowel perforation. I take Linzess 290mg 2x a day for gastro issues. PLEASE PLEASE PLEASE HELP ME! Im desperate for information and support!

[mashalazhar]

Mctd is mixed connective tissue disorder

[Lights.Liights]

to the layperson, MTCD seems like general malaise. Chronic malaise.

[angelab]

I am going to the toilet could you hurry up

[ahmedthamir]

why bother to diagnose when you gonna treat symptomatically anyway? 😒