What is POTS? Dysautonomia Awareness Month 2020

Postural Orthostatic Tachycardia Syndrome or POTS is a condition I've been living with for 5 years now. POTS is a form of Dysautonomia (or Autonomic dysfunction) which causes high heart rates and a plethora of other debilitating symptoms. This video lets you know what POTS is in the quickest and simplest way I could think of. I've got lots more videos coming up this month with some fellow POTSies so you can learn even more about POTS this dysautonomia awareness month so make sure you're subscribed.

I also do a weekly vlog called Chronic Illness Weekly which is, you guessed it, a weekly vlog showing you my life with Chronic Illness. I share my experiences with Ehlers Danlos Syndrome ( EDS ), Postural Orthostatic Tachycardia Syndrome ( POTS ) and Chronic Migraine. I fight chronic pain and fatigue and many other symptoms on a daily basis but I try not to let it stop me.

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[brigittedejager]

Hi Jenny, just wanted to add to this useful video that some symptoms are triggered by position change (heartrate, pooling) but some symptoms aren’t (like temperature dysregulation, pupil dialating) the POT part of the syndrome is the easily measurable part of it but a lot of symptoms come from the dysautomia part

[jivkogrozev]

I add this comment under many POTS videos' as I found few things that worked for me and reversed(not cured yet) the progress of my POTS, so I hope they can do it for you too..
I am a guy with POTS, a rare bird I know and it took a while to get diagnosed, but once I was the most help I was given was a handful of medication. Before my diagnose I was, as most of you, mistaken for having anxiety. A busy doctor prescribed me Xanax and let me go. That thing works, but it comes at a HUGE price so I took it twice and did not anymore. Since the other pills did help some, but not enough, I went on and did a internet research on substances like Xanax, benzos in general, and why the positive effect on POTS. It turns out the answer is simple - neurotransmitters. We lack some, our immune system is causing problems with some attacking specific receptors like ACH2 one. Knowing this then I went and did a research on what non addictive, no side effect substance can do similar thing as the benzos as they were not an option and for my surprise found one. Found a German study on special Lavender extract, did try it and it did miracles for me! In US it is sold as CalmAid lavender. I take one in the morning and sometimes one before bed. Recently I am not taking it on regular basis anymore as I don't need it much. No side effects, no withdrawal symptoms, only lavender burps. Usually taking it on empty stomach, Gave me my life back and allowed me to start exercising. On exercising - very important for POTS, and almost impossible for us! But there is a work around for that too - start swimming! When in water you don't get the orthostatic effects from gravity. Actually standing in upright in water will increase the blood volume your hearth can work with and will make exercising easy. Exercising will on its turn increase you blood volume and hearth strength, that will make standing easy. It does not happen overnight, but in few weeks you will feel the benefits.
I hope all of you find this helpful.

[whitney]

You are so beautiful! I love listening to you speak too! I love finding other youtubers who are helping spread awareness about Dysautonomia and POTS! just subscribed :-) xo Whitney

[kathyattwood]

Thank you for doing this. I’m still very much confused about whether I have PoTS or not 😏 my heart rate does rise more than 30bpm when standing. Sometimes a lot more lol. But during my tilt table test, it went up and down and back up again, so wasn’t sustained enough. So the hospital are calling it Orthostatic Intolerance and given me Ivabradine. Is OI I separate diagnosis or is it just that I don’t meet pots criteria 🤷🏻‍♀️😣

[Dustys_Daughter_]

Hi. I have SVT (Supraventricular Tachycardia) along with fibromyalgia, and Osteoarthritis. I get quite a few episodes of SVT, 2 episodes this year, which have had me in a&e, and having adenosine. Does POTS do the same thing needing medication to slow the heart down? I take bisoprolol 2.5mg a day, to keep my heart down to a normalish rate. Thank you for your informational videos, and daily vlogs 😊 xx

[positivelychronictravels]

this is so useful thank you for sharing and raising awareness

[jainendramishra]

I can't walk becuz of breathlessness and not tolerate temperature cold is shivered me i don't take bath because water is very sensitive for me

[jainendramishra]

Is stem cell therapy can help in dysautonomia or pots