POTS and Dysautonomia : Associated symptoms

In this video, i describe some of the commonest associated symptoms that patients with POTS and dysautonomia complain of. These include sleep disturbance, chronic pain and urological issues

[Sand]

Lots of bad symptoms 😞☹ pray God will heal many from this.

[englishgoddess]

I’m in tears thank you so much for your videos I try and get help but no one hears me I have looked my self away from the world I’m not me anymore I get passed about left and right so I don’t feel I can open up anymore it’s like talking to a brick wall I have no life at the age of 30 . It’s a battle every day with my body and at night I really don’t know where to turn anymore but you’re videos has gave me some hope. Thank you so much 🙏🙏🙏💖💖💖💖💖💖💖💖💖💖

[janatoe]

After over 20 yrs of suffering & being mostly bed bound (I’m 44 now), I just received Dysautonomia & POTS diagnosis from Cleveland Clinic. I was getting concerned that it was yet another wrong diagnosis until I just watched your video. I have every single symptom you mentioned plus many more. The most awful is the pain. It’s like I’m being tortured. Sometimes it’s body wide & sometimes it’s my upper half. I had two chiropractors diagnose me w Dysautonomia first - my neck is curved forward & problems all the way down my spine.
Thank you for this video.

[laurazammit]

Dr Gupta, I cannot thank you enough for your interest, learning, understanding and, raising awareness, for so many people having to go through debilitating dysautonomia conditions. There are so many invisible illnesses that we struggle with and seeing light at the end of the tunnel with doctors like yourself who genuinely want to understand and help is the most amazing news we could hope for. I suffer from NMH (Neurally Mediated Hypotension) which falls under the Dysautonomia umbrella. What I appreciate the most from you and your videos is, being able to share these with the people around me to hopefully help them gain an understanding of what it is and, what is happening inside my brain and body which they aren’t able to see. There is so much more I would love to be able to put in to words about your understanding and compassion. Thank you for everything you are doing for us 🙏🏼

[wytewillow]

I just got diagnosed with POTS. Apparently I have had it for years . I had so many different symptoms. My general doctors would look at one or two symptoms and test for whatever..like lupus, fibromyalgia etc. except for fibromyalgia all my tests usually came back “Normal”. I had for a long time thought there was only 1 thing going on, not this disorder and that disorder and something else. Finally I this past month I started just believing that all this was in my head :(

Couple weeks ago my general sent me to a cardiologist after hearing palpitations. He knew I have had tachycardia for a while. I now have a diagnosis of POTS. I can just cry after researching Dysautonomia! I have had this for some years and now only finding out. So many things make so much sense now. Especially my poor sleeping that no doctor could “fix”.

I am now researching to learn all there is about this condition and how I can help myself!

If you suspect you might have this, keep fighting to find the answers! It might take a while but keep fighting the good fight! I almost gave up. I am glad I had support that cheered me on to keep fighting! God Bless!

[CaptainObvious]

Your videos are a blessing to me! I have IST, Ehlers Danlos - from associated dysautonomia. I have tried magnesium and it seems to help with my extra heart beats a fair amount. The ivabradine I am on has helped sooo much with my IST and hence helped me to exercise more on the bike. Would love a video about IST from you if you have time. It's no fun and scary having these symptoms...especially the ectopics after lunch-time after I eat etc.

[emilylewis]

This is helping me understand my condition so much more. Thank you. I have a lot of these associated symptoms

[lolaj]

I've recently been diagnosed with POTS and your videos have really helped me in understanding the condition. Thank you so much

[mayflower]

This is spot on sadly. I'm suffering from almost all of these.
Thank you for this, makes you not feel insane

[EvLDvE]

I was recently diagnosed with POTS after a seemingly endless and exhausting search to find out why my body was behaving how it was including blacking out and concussions from the fall. I'm 37 and male and I feel like it's a disservice to not mention this condition for men as it may make someone searching for answers self diagnose that this is not what they are experiencing because they are male.

I suffer from every symptom you listed in this video and in the last 6 months it is rapidly progressing. I wish the US had passionate doctors learning more about POTS and our healthcare was universal because currently getting diagnosed / treated is near impossible. It required many hospitalizations and concussions for the right cardiologist to figure out what was going on. They nearly had put a pacemaker in me for no reason.

[adamrobinson]

I have hyperadrenergic POTS age 24. Took about 6 years to get a diagnosis. Extreme pain everywhere and in so many different ways but no explanation and fibromyalgia medications didn't help. Diazepam was the first medication that helped relieve pain, more so than a brief rx of low dose Vicodin did for me. It didn't resolve pain completely but it was a breakthrough with no explanation at the time. After a tilt table test identifying pots was made the diazepam controlling my sympathetic response and as a result my pain made more sense. Though no definitive explanation has been made to the correlation between this type of pain and sympathetic response, I'm hopeful new research into pots will unveil a better treatment for the pain and ultimately the autonomic dysfunction as a whole. My sister and I both have pots along with an unknown seizure disorder that complicated things for our doctors upon dx. I appeared to have a movement disorder along with shocks throughout my body but all neuro tests came back normal. Not knowing my sister's troubles, as we are quite different in age and location, I hadn't realized she has similar shocks and that the grand mals set off by repetitive noises when we lived together were ultimately ruled as rare seizure disorders associated with the pots due to her atypical complete conciousness during each episode, lack of EEG findings, but response to antiseizure medication. She had a paper written on her published very recently which you may be able to glean from. Let me know if you'd like it. Thanks Dr. for taking an interest in what is very real for some and unfortunately mostly misunderstood by all in 2018. Every bit of progress towards effective treatment is needed.

[patriciabennett]

I so appreciate your valuable information.My son has suffered a lot.He is coping but it is stressful.He is a father of three and is quite resilient.However even though he tries yoga, every time I see him so tired, not a normal tiredness.He used to collapse, also the passing of water he has to go often.I think it is so very kind of you as you are an extremely clever and important doctor who is helping so much . My gratitude is ten fold. Thank you for video and blessings and greetings and hugs.xoxo

[bophalgoo]

Omg I'm so happy I came across your video I've been suffering with Pots for the pass 13 years I've been to so many Dr which just always say oh your Depress And put me in all kind of medication .I can't sleep I pass out a lot I don't have a normal life just because of my POTs I cannot drive I'm weak all the time along with pots I have fibromyalgia 😢 I try every thing nothing seems to help at all thank u thank u so much for letting ppl know about this I would like to connect with u and share my story to others about pots god bless n thanks again for educating others

[paulawebb]

Another great info video about POTS. Thank you so much for helping to get the information out there. I know your quoted stats in the video are from a paper on POTS in childhood so I'd like to add that another telltale sign for POTSie women that I am noticed in my work with them is that their orthostatic intolerance symptoms are MUCH worse at the beginning of and during their menses (periods). It seems pretty universal. Thanks

[DaBongo]

Dr Gupta do you think hyperadrenergic pots is a different entity from " normal " pots ? I have postural hypertension along with the fast heart rate . I get a heat rising up when I stand up associated with warm skin which then goes ice cold and severe drenching sweats where my hair is soaked in minutes .I have no choice but to sit down . My bp has reached 250/146 with a pulse of 140 + . . These episodes are severely disabling and I am now dreading summer .

[lilbrit]

I struggle with finding information on only dysautonomia and understand POTS is the more common form of dysautonomia. I have all the symptoms, was diagnosed with dysautonomia. My heart rate on the day of my tilt test didn't go up 30 bpm but on most days it does in fact go up over 30 bpm, I faint, tachycardia, frequent urination, difficulty starting urination, numbness tingling, blood pooling etc. I also have PTSD which they are thinking maybe the chronic PTSD caused the dysautonomia but I also have pernicious anemia which went undiagnosed for many many years
I appreciate all of your videos knowledge! I hope I can find a doctor around here who understands dysautonomia or POTS, I have unfortunately not been able to find a doctor yet who doesn't ask "what is POTS?"

[ElizabethMillerTX]

I figured out my POTS myself. My cardiac doc's response was "Duh." Cardiology has no suggestions. They're just there to refill my beta blockers. Oh well. I've been studying like a maniac and made a stack of lifestyle changes, without my doctors' help. I've made dramatic improvements. Thanks for addressing POTS, doc. So many of us are DIY and need the guidance.

[d.stannard]

Hello, please can you do a video on Dysautonomia (with brachycardia and triggering PNS) and maybe also its links to covid19? I would be hugely grateful for your views and thoughts, I dont have POTS but I have a lot of symptoms for Dysautonomia following having covid 3 years ago

[AllofUsgrowing]

I have been watching all your videos on POTS. My daughter and I have have both been very sick for years now. I was told 5 days ago that my team of doctors think I have Dysautonomia. My question to you is can this run in families? See my mom suffers as well from many of the same symptoms and my sister did to until she died last year of cardiac arrest. She was 37. I have a pacemaker as I go from bradycardia to tachycardia. Right now my daughter and I are researching all the info we can. I would love to know what you think of POTS running in families.

[chooseaname]

i have pots. i have to pee constantly and i'm constantly drinking water. it seems to be immediately peed out. i also have retention...i will go pee and get up and sit down and realize i still have to pee and have to go back to the bathroom. it doesn't hurt, but i have to lean forward and put pressure on my bladder to get it out, even though i have the urge to pee, it doesn't come out easy. it is very uncomfortable to have that feeling all day long and i get no sleep because i'm constantly going. i'm always in a dehydrated state. its like your last hour lost in the desert feeling like you will die if someone doesn't save you right then and there...all day every day for me. i didn't have diabetes when i was checked. i have had this since i was a teenager and i'm 34 now, i'm at my wits end!