'I'm living two times above the age society thought I'd die at' - Talk It Out - BBC Africa

What is it like to be born with a disease that is not treatable? How does one navigate life when in constant pain?

Arrey was diagnosed with sickle cell when she was 2 years old. She has recently begun to talk about her condition on public forums.

What does her friend think about this secret?

[blackberry-qh]

My cousin has SCA, and she's in her thirties. God has the final say! God bless you💞

[FatimasWorld]

I love this. I live with sickle cell and yes it gets hard but its apart of me. baby girl you're going to be just fine. GOD IS WITH US

[orobev]

Sickle cell is treatable but unfortunately, disease modifying drugs, filtration of blood and proper pain relief i.e. treatment, is difficult to get in Nigeria.

[Terry-Oppong-RN]

Stay strong girl, I come from a family of sicklers and it is very hard. To anyone reading this, go for a blood test and that of your partner before you plan to get married or even before having sex. Nobody chose to have this gene

[faithrachael]

A family frnd of mine ws told he would never see his 20ties bt by God's grace his now a married man with a beautiful baby girl(let no man set limits or standards for u)

[thetruthonelove]

I got a friend she's a girl and she always get sick i wrote a text message to her that u will get better soon by God's grace she reply to me that my dear i don't think I will leave long so few days later i take my phone an go through her text. The word i don't think I Wil leave long keep me wondering wats wrong with her wats is she trying to tell me. So i ask one of her friends wats wrong with my friend .... so she tells me everything that she is having sickle cells sickness so I went to to search it on the net i was in tears when I find out the sickness but i don't tell her nothing because she didn't tell me anything about her sickness it's a secret she keeps away from me so I don't bother her to ask. But i tel her friend always try to tell her that God's give and take life so let her not discourage she can live to see her grand kids. May God's help people with sickle cells and other diseases

[sarahwahinya]

You are very gorgeous especially when you smile you so beautiful, i love that you strong 😍 only God knows our time

[_RockShine]

I just feel emotionally pain inside. Because I know how it feels like.

[RDCFemmes]

Funny enough many SS live longer than expected and manage to have a normal life

[janetkilika]

You are healed in Jesus name!!!! By the stripes of Jesus Christ in the cross you were healed!!!! Confess that my sister.