Multiple Sclerosis and the Devil's trick 😈. Don't fall for it!

I was recently asked if it's ok for a person with Multiple Sclerosis to avoid taking an MS Medication. To hear my response, please watch this video: "MS treatment: OK to avoid Multiple Sclerosis Medication?"

The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! I look forward to reading and responding!

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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!

[PersephonePersonified]

“You may recover, but you still have brain damage.”
I often have to remind myself, and others, of this and accept I’m doing my best.
I think the biggest take away is to have patience with myself, and others who are unaware.

I appreciate these shorts that open room for expression and discussion to help others understand.

[kerriasnow]

Explaining that I have permanent brain damage that will never go away, (even though I don’t appear to have what they believe brain damage to be), is absolutely exhausting. I’ve had to end relationships with some friends and family over this fact.
Explaining to someone that you’re sick and in need of a wheelchair or a walker. Or that you have brain fog, (which is one of my more common symptoms, it presents and my baseline) that worsen with a flare or a pseudo flare… it’s like looking in the face of someone who thinks you’re lying about having a disease at all. People find chronic illnesses difficult period! They don’t understand the concept of you being sick and never getting better and never dying. So what appears to be complete healing to them and then going back to crippling disability is hard for them to grasp the concept.
It’s difficult for me to hear “what happened, you are all messed up and now you seem to be normal” it’s heartbreaking to me. I get angry because I’m like if you cared anything about me, you could do a short Google search and you would understand the concept of relapsing and then remitting. Now that I have secondary progressive MS, it happens so much more often. This causes isolation and makes my disease so much much worse. I try and send these videos out, but even though I know even those who really loved me, don’t really understand😢. It’s unbelievably lonely, and support groups aren’t helpful in this particular aspect for me because they aren’t family.
My mom has neurosarcoidosis, I have an aunt on both sides of my family with lupus (coincidentally my first diagnosis which is probably the cause of my infertility due to prolong use of methotrexate injections) it sometimes makes me wonder if maybe my great grandparents were cousins or something😅. I just wish I could better predict the flowers that are complete outliers to most common disease path. That way I could go hide for a few months.. that might not make sense. I’m just coming out of a really bad pseudo flare caused by a really bad infection. And infection started by UTI spreading to my kidneys due to my neurogenic bladder that requires me to use catheters. This brings us full circle, because the neurogenic bladder is caused by the multiple sclerosis. I’ve been formally diagnosed for 17 years although there are signs of MS through my childhood. I have a great neurologist, but this stuff is so confusing at times! I’ve developed depression and anxiety, which I’ve never had to deal with before. MS is exhausting.

[desiredecove]

Diagnose and Treat ASAP- hit em hard n fast.💪🏻🤘🏻

[anagongs]

Optic neuritis in 1999- diagnosed in 2016 - stress induced !!

[uptoeleven]

I wish my neurologist had told me this 20 years ago ...

[daisyjo]

Took so long to get a diagnosis! First attacks in my late teens. Was misdiagnosed until age 35. Am now 55 and am lucky I can walk short distances with a cane or walker. I truly mean I am lucky. All of you out there with advanced MS, I see you! 💞

[nyahmanismommy]

This does worry me bc I didn't take any meds for the first 15yrs bc I "felt okay". Wish someone had explained this to me earlier.

[wonderfullymade]

After my initial diagnosis, I did feel the best. After an attack, I would bounce right back like, "What MS? I'm fine!" That was not the case.

[javafiendx]

Although it’s true it is still hard to listen to and accept 😢

[angiebear]

Really needed to hear this. All three of my first attacks were on my c spine. Had two very small ones on my brain after that I didn’t even notice. Been told how lucky I am despite the crippling chronic pain and fall into the I’m ok, I’ll be fine now trap quite often.
Ty for these shorts. Have reopened my eyes and reminded me to take this more seriously ❤

[kmcq]

I can’t even. If ever there was a time to feel sorry for myself and say could woulda shoulda, it’s watching this. Waaahhhh!

[PaulKearney-sqnh]

Dr Boolster is an absolutely brilliant man and Doctor, he breaks down subjects and makes them easier to understand ‼️

[roberture]

God bless you Aaron, I wish I had known this 10 years ago but hindsight is 20/20.

[ashleyyyy]

I wish I had heard this then. I was 22, and Rebif was the only medication option and med compliance was really hard due to all of the horrible side effects (and the whole needle part). I was blissfully living in denial that I even had MS. It wasn't until I had a relapse 7 years in that I even fully accepted that I have MS.
Convincing me to take my medication regularly was like telling a teenager to wear SPF 50 to delay visible signs of aging in the future.

[CypeltResortAustralia]

I wish my neuro told me how important the first 5 years were!! I chose a holistic approach for the first 3 years. 😢

[FatLittleOldLady]

<3 You are awesome. <3 The heart is not the flirty kind of heart. It is love for a human who cares about their fellow humans. That's you. You are legit. You are real.

[srobertweiser]

I had more damage done in three months from one of those lousy DMDs than chronic MS caused in the previous 15 years, and I never fully recovered from it. Rebif was the worst experience of my life and it left me with tinnitus. My ears have been ringing nonstop for the last 17 years.

[JoJo-xzrb]

You are a Godsend Mr Aaron Bolster. I love watching you. In fact you have definitly made this ms journey easier for me and im sure lots of other people ❤

[vanessagalbreath]

Had four major strokes and two TIAs wasn't diagnosed for 25 years. I must say GOD Set my rise HE kept rewiring on my behalf. I completed my Bachelors degree and got a Masters all as a cum laude then suma cum laude while physically functioning after each stroke. HE made a way out of no way.

[ScottMarc-RT]

Thank you Dr. Boster for your clear informative statements. I would have benefited from these statements 33 years ago. Rather than you "your disease is benign", "you're a 34 yo male", "you have nothing to worry about". I understand top neurologists specializing in MS weren't so wise in those days or were reluctant to reveal the likely possibility of progression. Subsequent complaints of subtle progression were minimized by these same top neurologists specializing in MS. The approach to treating MS from onset has radically evolved.