Guillain-Barré Syndrome (GBS) 101

This whiteboard-style video will provide you with a basic understanding of GBS and answer some of your questions. It's a great way to teach your family and friends about what's going on with your body!

Questions about Guillain-Barre Syndrome (GBS), CIDP, or a variant of the condition such as Multifocal Motor Neuropathy? Or perhaps you'd like to request more information? You’re in the right place. Please connect with us below, and a GBS|CIDP Foundation International representative will get back to you within 48 hours:

[petterp.knutsen]

I'm currently hospitalized with gbs. I was seriously harmed by it and got trouble breathing and doctors feared it would reach my heart. Today it is two weeks since I was hospitlized and I'm already up walking, though I do have some slight troubles with balance. The doctors say they have never seen anything like my development and chances are I will be starting a rehabilitation program this week. To all my fellow gbs patients, stay strong <3 You'll get trough this.

[luluangel]

To any of you who have gbs, I wish you all strength and wellness, be strong

[judy_wj]

Being diagnosed with gbs at only 16 years old was another phase of life, , i recoverd after an year...to anyone suffering from this, , nutrition and exercising is the only solution

[thatswhatshesaid]

NEVER STOP EXCERCSING.
I was diagnosed in October 2013. I was 20 years old. Fully paralysed with unbelievable pain. With a lot of hardwork and extensive physiotherapy i was able to get back on my feet and even started working by Mar 2015. One mistake I made was to stop exercising regularly because of a hectic work life. My body could not take it any longer and I had to quit in 2020 and focus entirely on health again. It's been 3 years an I'm finding it very difficult to go to the next level because my weak muscles are constantly going under strain when trying to strengthen.
Nevertheless still continuing physiotherapy and hoping for the best. All the best to anyone who is going through GBS❤️

[brandongreere]

Just found out from the doctor I have it I started crying and got real depressed but I’m a keep faith that I can get over this

[charlotteschwenger]

I was 11 when I got this Syndrom. Now I’m 14 and healthy! I’m so grateful

[dariusdeasiacooks]

I was diagnosed in 2014. Paralyzed and went through years of pain n therapy. Its 2022 and I still have numb and tingleness yet I'm blessed to be here. I had plasmapharesis and lumbar punctures. Still under doctors orders yet blessed. Thank God.

[shantelleadeline]

Have you tried treating yourself with Weedborn CBD products?

[saeidhn]

I got GBS when I was 16 and got hospitalized for 2 weeks but my recovery phase started in 2nd week and I was completely fine in 2 months. It was almost 20 years ago.

[courtneythomas]

My sister had this syndrome when she was at university she was in the hospital for a long time she is now in recovery and now she has her own business

[perplexity]

I had this disease. Prayers to those that have it currently. It's not fun.

[sherlockwatson]

I was hospitalized for 2.5 weeks at 26 with this disease - took me months to recover the ability to walk after getting out of the hospital I lived alone and was lucky to have the support of my parents that got me to the hospital and past it. It started with a a severe stomach bug. I’m still numb in my feet but have worked hard through physical therapy to get my strength up.

[dreamworld]

I had this thank god and his grace i got through this. Prayer to all who suffer from this. Stay strong. 💖💗💖💗

[sewme]

This is a rather soft but accurate description. The part that is left out is where you will spend two months in a hospital in INTENSE pain. If you begin to experience numbness or tingling in the bottoms of your feet followed by the same sensation in your fingers/hands within a few hours get to a doctor or hospital immediately. The sooner they diagnose it the better. Once it begins you will not get better without help and trust me, you won't want to do it alone, you couldn't bear it. If you are diagnosed brace yourself for a long painful journey but you will live and get better. Two years on and I still suffer with weakness and crushing exhaustion but I can walk again although my feet and fingertips are still numb.

[piyushmohapatra]

I had GBS when I was 6 years old, then I couldn't understand what was happening with me. But now when I remember those painful days I feel lucky that I have recovered. God bless all of you who are currently suffering from it.

[mohammedashraf]

I’ve recently had treatment for GBS Iv drips 9 days in hospital.
After discharged from hospital now I’ve got my balance back and able to walk slowly with sticks.
85% of people recover fully 3/6 months or over a year.
You will overcome this at some point and will return to normality.
Walking and building up your muscles are essential.
You will get there keep smiling.

[carolinebrown]

I had GBS and seem to have a great recovery except the irritating fatigue and muscle weakness. Your explanation is spot on. Ty

[DomSamui]

I am 11 and have GBS now for a year. I can't walk yet but am getting stronger and can't wait to play basketball again

[brayantcastillo]

I was 11 when I got this.
Im 28 now, very healthy. I wish you all the best recovery possible!

[EricSeabs]

22nd of October 2018 I noticed weakness in hands and feet, hospitalised on the 25th as I could no longer walk / get out of a chair even crawl, ambulance had to collect me from home as I could not get off the floor - essentially weak as a baby. Had 5 days of the IVIG treatment and as soon as I felt sensation I worked the hell out of my limbs. I was discharged from hospital after 7 nights walking with a walking stick to help me be stable walking, next day at home I got rid of the stick. Still weak but working on that. Posting this so people who are diagnosed with GBS know there are cases where rapid turn around is possible - keep positive and keep working the muscles as much as you can! Stay strong all.