My Fibromyalgia Story!

As I said, I had uploaded a similar video before but it has disappeared from You Tube, so I made another one! This is more updated too so gives you my illness up to date too. Enjoy and see you next time!

SOCIAL MEDIA
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[amymarie]

My fibromyalgia diagnosis experience is exactly the same as yours. I feel your pain. I too was signed off from the pain clinic because i couldn't afford to take the time off work. Ironically from a job i was struggling to do and needed help and support to manage due to my pain. Now it's just about coping the best i can. My GP has been useless in supporting me. I always feel like i'm wasting her time. It's a very lonely condition to have without people around you who understand.

[irenes]

I too worked within schools and loved my jobs, it is sad when you have to stop work due to ill health isn't it. But when you don't sleep well, your in constant pain/fatigue/IBS/brain fog and all the other symptoms you become unreliable within the workplace and that's brings on stress too! I too live in a bungalow and it's been a lifesaver for me and I have slowly adapted my home/garden to suit me. We certainly go through a grieving process to get to the point where we can accept this new way of life and even then I have my days I'm in denial. Your story sounds so familiar, thank you. Xxxx

[samanthadugmore]

Hi Nicola thank you for all of your videos especially your Fibromyalgia videos. Since I’ve been diagnosed I haven’t had much support off my rheumatologist but hearing your story and hearing about what you find helps on your bad days has helped me enormously. I don’t feel so alone anymore and i look forward to more of your videos :-)

[Mrsran]

Thank you for sharing, Nicola! I've suffered with chronic pain and everything that goes along with it since the early 90's. I started my nursing career at age 17, and when the pain issues really progressed I was around 28. My GP referred me to the pain clinic in the hospital that I worked at in Nov 2002 and thankfully they were so caring and really listened to me and what my body was doing to every aspect of my life. Here it is 20 yrs later and even though several of the doctors & staff have come and gone I still am a patient there & I see my wonderful clinician(s) every 3 months, or sooner if I'm having any issues. Sadly I had to retire from nursing(which I absolutely adore)in Nov 2019 at 54yo due to severe POT Syndrome & Idiopathic Dysautonomia, along with the Fibromyalgia, herniated discs in my neck, & arthritis and widespread spinal degeneration. My life has changed so drastically these last few years and if it wasn't for the love of my life, hubby Randy(who I met in HS when I was 15 & he was 17, & we're still going strong 42 yrs later!), my 2 wonderful sons, and loving support of my & hubby's families, I'm not sure I could of kept going in this journey calle LIFE. I'm so blessed to have found your channel & I just love watching your videos so much! Have a fantastic rest of your week, big hugs~Lisa💝

[Guerrerossiempreguerreros]

Thank you for sharing. It seemed like we have the same sort of story. God bless you and your family ❤

[julieford]

l love the blog very interesting information and well done for being very positive its not easy when you are in pain l know because l stuffed with the same condition plus other conditions .but every day l
is different day and we do try our best thank you for sharing lovely person ❤

[christinastylist]

Hi N,

Thank you so much I have suffered with fibromalalgia and ME since 2019 and it's horrible, you're a prisoner in your own body! The outer appearance is very deceptive so when people see you with your makeup on, and as you said we do it to feel better within ourselves. But the daily struggle is real, I don't feel so alone hearing your story and knowing it's not all in my head! Thank you for your videos 📹 it really does help and make me happy 😊 wishing you all the best 🧡

[maureenandrews]

Hi Nicola interesting listening to you. Your positive attitude is amazing 👏. I finally got a diagnosis 2 yrs ago along with Sjogrens syndrome. I really struggle most days. 😪 but watching your vlogs gives me hope 😘

[mirandahasplans]

So sorry to hear you're in a flare up. Thanks for the video!

[nie]

Hi Nicola, found your video really informative, before my first appointment with the rheumatologist I got myself in such a state because I'd heard that some rheumatologist dismiss fibromyalgia and I thought that was gonna happen just like it happened to you. But I had such a lovely rheumatologist and felt such relief to actually be told I had fibromyalgia, I think you explain your illness so well and wish you the best for the future, keep making the videos lol xx

[jackieedwards]

Hello Nicola thank u so much for this video it’s such a true story it took so long to get diagnosed with fibromyalgia and it’s not a nice experience what we go through some doctors know nothing sorry u went through so much u r amazing the way u cope I am so happy I found your channel it helps me a lot thank u so much take care keep smiling c u soon uk 😀😊

[prettywomenswag]

Thanks for the video xxx appreciate hearing how you found out you had fibro

[bevmagee]

Fab vlog niki.
This is why I have followed you for yrs now!
Because you make sense of all the jargon doctors chat! Uou spent so much time researching a d sharing your finds which has helped so many of us understand in a much uncomplicated way .
Thanks for you do niki 🤗🤗 xx

[viviennewalsh]

Hi haven't been on ur pg for a while you just popped up. Love ur videos.

[joburnett]

Hi Nicola.
I found myself nodding & smiling through most of your video. I too have fibro and chronic fatigue and like you had the struggle of getting a diagnosis and being treated like a fraud. Thankfully got diagnosed my 2nd time of being referred to a rheumatologist!! Also got severe arthritis to add to the equation so I’m waiting for a new knee & new shoulder which given the NHS situation could be a loooonnnnggg wait! However, like you, I’ve struggled to work through the many years of pain & tiredness, but I’ve just had to admit defeat after my 5th bout of COVID (yes obviously god didn’t think I’d had enough suffering 🤦🏼‍♀️ he decided to add long COVID to the mix 🤷🏼‍♀️). So am now waiting for ESA assessment, which I hope isn’t as flipping difficult as PIP!

Anyway I just wanted to thank you for sharing your story as I know it will help people who are looking for answers and will resonate with others like me who have been through the struggle as well!!
Keep doing your lovely content and keep smiling
Jo ❤

[maltesecross]

My days Nicola your story is so like mine ... I was a TA in a school mainly for SEN children, been there 11 years. In 2010 I started with hip pain...went on for years had gabapentin, oramorph, tramadol and many more pain relief products, and yes been on that pain relief course, tried to sit on those hard chairs, wouldnt do another one for sure . in 2012 I had an op to try to sort hip out but I've been left with severe pain ever since!! I had to reluctantly leave my job. A Dr recently seems to think I may have fibro but as of yet not diagnosed. I was told by one GP that there was no test for fibro when I asked about it years ago. Needless to say still in chronic pain this ruins my life but no real answers.

[ashatan]

I hear you about the pain management course! I live in Canada and the one they offered me was 4 weeks long, 9 am - 4 pm. I couldn’t work because of the fatigue and particularly back and neck pain. I had to pass. Then when I applied for disability they used that against me for not “trying hard enough”. If I could do that course I would be able to work and wouldn’t need disability! In fact, if I had of gone I’m positive they would say “well you managed this program so obviously you can work. These pain management courses are not meant for people with fatigue, only pain. The woman next to me in the info session had carpel tunnel. The pain was isolated to her wrist. People don’t understand that fibromyalgia is an illness. You feel unwell 24/7. I thought I was dying if a horrible disease when I started experiencing symptoms. It effects your entire being.

[emmadavies]

There’s a lot of similarities with myself, some differences too. Thanks for making this, Nicola. Feel very emotional. I will be sharing it ❤😀 xx

[lynnewoodby]

Thank you for giving your story again. I enjoy your channel so much

[elizabethdarley]

Hello! Wow! Buying a house at 18! Well done! May I say that your hair and makeup is lovely. Beautiful. Love from Elizabeth (Bess) in Yorkshire x PS I also have fibro and I am in the middle of a flare up. 🙂