Life after a diagnosis of Sanfilippo syndrome

Bala and Neeraja's daughter Naomika was diagnosed with Sanfilippo syndrome, a form of childhood dementia, at the beginning of 2022. This diagnosis came just 10 days after the family was reunited after being separated for two years due to COVID-19 border closures. Listen to how love and the tiny moments matter when you are faced with a life-limiting diagnosis for your child.