Primary Progress or Relapsing MS? Are You Really Sure?

In this video, I decode the differences between a Relapsing and Progressive MS Diagnosis.

The Boster Center for Multiple Sclerosis accepts new consultations and is actively enrolling several MS clinical trials! www.BosterMS.com or call 614-304-3444 to schedule!

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COMMENT with your thoughts and questions below! I look forward to reading and responding!

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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!

[BenLeitch]

This topic comes up quite often in FB groups. So many people say that their neurologist never gave them the full type of MS. Thank you so much for this info.

[sandraramsey]

I wish you were still my Dr. Boster. This illness is awful. I appreciate what you do.

[carolinemurphy]

Thank you so much for all your vids about ms. My husband has RRMS for the last 29 years and is doing good..As had only 3 relapses in his life, even though he has over 40 lesions in the brain. He is walking and very strong. He is 52 years old and one of the first in Ireland to start on beteferon when it came to Ireland. He is on gilenya for the last 3 years, went on gilenya after his last attack.
Thanks again for all you do
Caroline from Ireland 😃

[EvenSoItIsWell]

Excellent video Dr. Boster! Thanks so much for sharing and being an excellent listener!

[mikeecko]

Long time no talk Dr B. I'm sorry I haven't been around for your videos. I recently just got a new neurologist because my doctor retired. The new doctor said that I have PPMS now. I was told I had RRMS originally. Over 5 years into this horrible disease and I'm still fighting. I'm going to be put on Lemtrada after I get my next MRI. I hope everything's good with your clinic Dr B

[dnjmcdonald]

I just got re-diagnosed with MS. I was diagnosed 15 years ago, my neurologist retired and I've been left with the struggle of proving I have it. After many attempts with many different doctors, I found one. She performed an MRI, still didn't think I have it. She then ordered a lumbar puncture. 11 11! Thank you for your videos. They provide me with information I cannot get anywhere else

[Jerusalem_Warrior]

By me, it was a no-brainer: "I never HAD an 'attack', doctor, I'm ALWAYS like this". That was in 2018 after a brain scan full of lesions and a positive spinal fluid tap. PPMS diagnosis and straight onto Ocravus, stable around EDDS 6.5 - 7.5 ever since. 😔 🙏 Best regards from Jerusalem! 🤗 ❤️ ‼️ 🙌

[sabrinaabdul]

I got diagnosed two days ago, im from Dubai and randomly stumbled upon you. before my flare up that caused my right eye to go blurry i never even heard of MS. So i was so blessed to find you at such an early stage of my diagnosis because you've answered so many questions and gave great advice! And the comments under your videos reassured me that you have impacted the MS community positively.

Ill be getting all my MS info from you and my neurologist. Not tryna stress myself and get another flare up😅

[FotomanCalgary]

I was diagnosed with PPMS 5 yrs ago, and it wasn't a slow increase...I was scrambling mountains just before I got diagnosed, then a slight limp about 6 months later, and a year later a permanent limp. Now it's a permanent limp and can't do too much physically such as changing bed sheets. No spinal tap, but I had many MRI's during the diagnosis.

[bubbaad]

Thanks Doc this helps me understand what I'm going ppms is what I'm dealing with and Jesus is my hope and joy through this trial.

[pollyolaughlin]

I was diagnosed with MS June 2022, found after a TIA. After talking with the neurologist the MS explained the past 20+ years. I guess I was trying to avoid learning about MS but your videos are very informative and helpful.

[SMOOTHFUNKYONE]

I wish you were located here in Charlotte, NC. I gain so much information about my MS from your videos. Thanks

[cherylvl]

Thanks for another great video Dr. Boster! It seems PPMS is always described as a slow steady progression. I’d love a video discussing the less common, aggressive PPMS. MS that causes loss of walking ability in less than 5 years from first symptom. Thanks again for this video❤️

[Momma_Gee]

I really appreciate your videos. I was diagnosed last year at 51.
Since my early 20s, I have knowingly battled ulcerative colitis, depression and anxiety, endometriosis, and adenomyosis.

Last June I was diagnosed with multiple sclerosis, and this past month with lipedema. Not lymphedema. Lipedema. And hypermobile ehlers danlos syndrome- which seems to partner with lipedema 🤔.

Anyway, this past 1.5years have been a lot but your channel has helped me so much! The more I know the less out of control everything feels right now.

[nancyklingforth]

This is my first experience with you, Dr. Boster. I was diagnosed with MS in 2009 and believe to have relapsing MS. Your explaination cleared it up for me and will be watching your channel from now on. Thank you for all the info.

[MelissaHager-tz]

Thank you! I wish you were my doctor. Besides having MS (which is no walk in the park) - it's the doctors who are refusing to listen or offer adequate help. I didn't go to medical school for a reason - so I'm really not sure why I have to read medical journals and pharmacology reports on medications to "tell" my doctor my course of treatment. It's frustrating and adds to the depression and isolation this disease already causes. I appreciate how much care you offer your patients and the rest of us who watch your videos. Know that you are a very special doctor.

[mommabear]

I just love how you explain things! Thank you!

[lshinkle]

Thanks Dr.B, I've had RRMS now for nearly 24 yrs, I've never asked any of any doctors, you included, to explain the difference between these two forns of MS. Thank you fur this and EVERY OTHER video you have ever made! WE APPRECIATE YOU SO MUCH! There are many NeuroChiefs in our MS Warrior battles, amoung whom YOU ARE one of THE BESTEST ONES! Thank you! 🫶🏽🧡💪👏🏻🫂

[gloriayahawadah]

You’re such a great teacher! Thanks for making this information so easy to understand.

[animalsmakemehappy]

PPMS.
Wow now I understand. My onset was blind in one eye in brazil on holiday. 2000. saw Dr said it was the HEAT. ANYWAY over a few years i had the weirdest things happening to me, balance off, hated heat, slowly very slowly my mobility changed, 2006 i couldnt walk that well stiff legs, but i could still function and do my job. then I woke up and struggled to stand, the doctor came and my journey started. i saw neuro in 2007, and had VEP test confirmed O.N bilaterailly. I noticed i used to walk my dog across the park everyday, and slowly over time i struggled to do that, in fact one day i had to ring my hubby to get me i was exhausted. but still functioning. I never spent time in bed, but my life seemed to change drip by drip, more problems with eyes, i had 3 lesions on spinal cord, the LP my neuro said just confused more as muddied the waters.

He said he knew i had MS but was confused. now this was back in 2015 in UK. Late 2015 i again had issues with eyes, colour vision off etc, and i was more disabled but still functioning. my bladder and bowel had been a nightmare as well oh i was signed off work several years before as my cognitive issues were dire.

still functioning in late 2015 i had another VEP test, and in january 2016 was diagnosed with PPMS. so where am I now? oh yes still functioning, but mobility is very bad now, ad i struggle to walk, i am 73 now. I have such awful pain in my left leg i could scream, constantly have bladder and bowel issues, and my eye sight has deteriorated i have to now wear prism glasses. IN THE UK THERE ARE ONLY 1, 500 with PPMS, but over 100, 000 with RRMS.

MY ISSUE is people dont believe I have MS because i do not lay in bed all day and still function to a certain point. its getting harder and harder, but i do it just. but overtime its robbing me of my life, i worked hard before i got MS, and bit by bit, slowly things were taken away from me. i didnt get to have ocrevus as i was too old and too far gone. I dont do stress well and feel hopeless now. I just want to give up and be with my husband. he passed in 2017. I JUST ALSO WANT care workers and people who work in the field to understad that there are DIFFERENCES in MS. The ignorance i come up with is draining. Oh funny enough my vision in 2000 happened about a year after i recovered from EBV. Anyway thanks for this video it makes it all so clear now.