filmov
tv
Cure Sanfilippo Gala 2020 - Mission Moments 4

Показать описание
Mission Moments 4: This was our final segment during our Gala event. It is family stories and our messages to YOU, our amazing supporters.
We were particularly and personally touched by Mom Kathy Sink’s words in that segment “We don’t want to go…where this is going to go". We know all Sanfilippo parents feel exactly the same.
And we hope our overwhelming and sincere THANKS to you came through in this segment. We all are very aware that:
- You make all of this work possible.
- You are the ones that lift our spirits.
- You are the ones that bring hope.
- You bring the chance of health..which would lead to so much happiness for these families.
We are so thankful for you. Have a great Holiday and New Year!
Thanks again to the video contributions Kathy Sink John Sink Do It For Declan: Cure Sanfilippo Jill Wood Jonah's Just Begun Dan Fraley Valerie Tharp Byers Tim Byers WILL Power: Our Journey with Sanfilippo Syndrome Christine Lee Moon William Moon Jacob's Journey Benjamin Von Wong Von Wong Josephine Shamaly Kerry Shamaly Dear Ellie: Our Fight Against Sanfilippo Syndrome Lisa Rixer Andreas Rixer Krama era barn Shelby Leonardi Sara Hesse Burroughs Cure for Carson
We were particularly and personally touched by Mom Kathy Sink’s words in that segment “We don’t want to go…where this is going to go". We know all Sanfilippo parents feel exactly the same.
And we hope our overwhelming and sincere THANKS to you came through in this segment. We all are very aware that:
- You make all of this work possible.
- You are the ones that lift our spirits.
- You are the ones that bring hope.
- You bring the chance of health..which would lead to so much happiness for these families.
We are so thankful for you. Have a great Holiday and New Year!
Thanks again to the video contributions Kathy Sink John Sink Do It For Declan: Cure Sanfilippo Jill Wood Jonah's Just Begun Dan Fraley Valerie Tharp Byers Tim Byers WILL Power: Our Journey with Sanfilippo Syndrome Christine Lee Moon William Moon Jacob's Journey Benjamin Von Wong Von Wong Josephine Shamaly Kerry Shamaly Dear Ellie: Our Fight Against Sanfilippo Syndrome Lisa Rixer Andreas Rixer Krama era barn Shelby Leonardi Sara Hesse Burroughs Cure for Carson
Cure Sanfilippo Gala 2020 - Mission Moments 1
Cure Sanfilippo Gala 2020 - Surprise Introduction!
Cure Sanfilippo Gala 2020 - Mission Moments 2
Cure Sanfilippo Gala 2020 - Mission Moments 4
Cure Sanfilippo Gala 2020 - Mission Moments 3
Carson's parents have something to say to you
Cure Sanfilippo - World Symposium 2021
Cure Sanfilippo Foundation Trivia Gala Night - Krama Era Barn
Sanfilippo Syndrome and the fight to find a cure | Cure Sanfilippo Foundation
The most important presentation on Sanfilippo Syndrome
Parents' first watch of a video they hope will save dying son
What Is Sanfilippo Syndrome?
Cure Sanfilippo 💜
Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more
Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & m...
Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more
Parents' first watch of a video they hope will save their daughter Liv
We thought it was Autism. What we found out...unimaginable.
Saving Eliza
Development of Global Consensus Clinical Care Guidelines for Sanfilippo Syndrome, WORLDSymposium2023
Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more
World Sanfilippo Awareness Day 2020
Family fights for clinical trial addressing daughters' rare diagnosis
Mom of 7-year-old with 'childhood dementia' shares story to fight for a cure l GMA
Комментарии