Cure Sanfilippo Gala 2020 - Mission Moments 1

preview_player
Показать описание
Mission Moments 1: Here, we review some basics about Sanfilippo syndrome, the Foundation, and a family story.

Thank you to the Esposito family for sharing these very personal moments. It’s easy to see how TIME is such a major component in this disease.
It's thanks to YOU our supporters that Cure Sanfilippo Foundation has been able to help move the research needle forward faster.

Thanks to all partner families in this video: Keira Esposito Curing Keira: The Battle Against Sanfilippo Saving Sadie Rae: Cure Sanfilippo Solomon's Soldiers Lindsay Daniel Merrick Christel Fernandez Alina Gorniak Croke Super Simon Says Cure Sanfilippo Syndrome Leslie Abernathy Jurado The Isabel Jurado Foundation Rest in Peace Izzy ❤

Рекомендации по теме
Комментарии
Автор

Mam how can i contact you.i need your help.i also want to be the part of this journey

shenbas
visit shbcf.ru