I Have Autoimmune Hepatitis (AIH)!

Not a surprise, but it's true -- I finally got my autoimmune hepatitis diagnosis! My liver values would put me as someone with moderate AIH, so the next steps aren't necessarily as clear. There is relatively standard treatment for this disease, but my body had a heck of a time with steroids in the last two years.

So... it's referral time! I'm a little too excited about going to a liver center, but here we are!

[ARAMOS-ldbd]

I just found your videos looking for videos on liver biopsies since I was recently referred to a GI for possible AIH. I am a very anxious person and suffer from health anxiety so this whole thing is terrifying. Your videos are so helpful to me. You explain everything so well and in such an informed manner. I also love how open you are about your anxieties and doubts with the whole process. I'm hoping I don't test positive but if I do I'm glad there are people out here informing on their experiences and making this whole thing less stressful.

[robert_oh]

if anyone is being put on a lot of steroids PLEASE get a psycologist, they mess with youe mental and phisical health so much so fast

[zaraz]

Hi Sarah. I will take your offer to talk about AIH. About to get DX.

[aminah]

I got tested for this disease today I pray I don’t have this . I took prednisone years ago for my migraines and made me feel awful like I was going faint

[Maturleyglam]

I have AIH diagnosed 9 years ago. My doctor REFUSES to treat, test ect he tells me you dont have it its too rare. I tell him and show him my biopsy results he STILL ignors it. Im having horrible fatigue, so much pain i cant walk more than 10 steps very slowly, i have welps and rash all over my body and my lower stomach is killing me. How can i get help? I have medicaid and specialists dont take it!

[peytonsage]

i got diagnosed with this when i was 12 years old and it's just miserable to deal with and i've only been aware that i have it for a year now and it takes getting used to but when you start to get used to it is so much easier to handle

[staceystrukel]

Did I miss the part where your doctors discussed diet, fasting and herbs that support the liver and immune system to heal?

[jessicalegan]

I know you mentioned in another video that you had upper right abdomen pain/discomfort. Is that likely from the AIH? I have that pain too...and LC, but no tests show anything and it's getting frustrating. I have always thought it was something liver related because of the area but nothing on tests so far. They say it's 'probably' the LC but I'm like but what if it isn't 😬🤷🏻‍♀️?

[maniok]

I have just got the diagnose, don't know what to expect from now. Feel worried and yes, anxious. No surprise coming from an autistic person also diagnosed with anxiety.😢😂🥴

[robert_oh]

i got diegnosed when i was 10... i am now 16 lol If anyone has any questions about ANYTHING i may be able to help hhaha

[ynoomi]

Hey, I was diagnosed AIH, 1 week ago. What antibodies did your test show? I don't think I can get a biopsy, because i'm asian, the health sector has not developed sufficiently.

[kishanamoli]

Is autoimmune hepatitis is curable in alopathy.
What's your doctor say its can be cured or only manageable.

[akshayrana]

Type 2 autoimmine hepatits is any hopd, ?

[franciscoorozco]

Hey my girlfriend has the same condition . It seems like you are very well informed about aih, would you be open to talking to her via email or WhatsApp ? Thanks so much . Blessings to you :)