Diagnosis and Management of Pediatric Ataxia

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Experts from Johns Hopkins and Kennedy Krieger join NAF to explain how to recognize Ataxia in children. They discuss the importance of achieving a diagnosis, review available treatments, and discuss guidelines for disease management, with a focus on navigating school accommodations and services.

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My son has been diagnosed with SCA5 at 2 years old. Is there any advice you could give us to improve his independence

yaminabensakran
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I've also joined the Facebook group but my request hasn't been accepted

yaminabensakran
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I'm 42 with Arsacs Ataxia diagnosed at age 33. I still work maintenance for a city. I drive, golf, go to gym an work out at least 14 times a month also. Which I think helps me maintain walking with afo braces. My question is I hope that my 10 yr old doesn't have it. But is there anything I can do to help prevent him from getting it?

jermanyon
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