Resources for People with Invisible Illnesses & Disabilities (with Debra Ruh)

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KEY TAKEAWAYS FROM RECOVERY INTERVIEWS ►►
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LET’S BE FRIENDS:

TIMESTAMPS
00:00 Debra’s impressive history and accomplishments supporting people with disabilities
01:50 How Debra’s passion for this all started with her daughter
04:30 Why our ME/CFS community is awesome
06:32 Who are the 1.7 billion people with disabilities? What happens when we come together?
11:47 Demanding fair and equitable treatment - times are changing for the better
21:25 Supporting the UN Sustainable Development Goals
24:20 How do people with disabilities come together and find each other when 80% have invisible disabilities
32:57 How to get involved and learn more

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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.

#chronicfatiguesyndrome #cfs #chronicfatigue

[AnrupB]

I’m a minority in every way she stated. Employment has been a huge issue, so I started two of my own careers becauseI felt I had no choice (one also with hiring the underrepresented and putting actual inclusive practices in place). I also only spoke at music festivals that promote gender equity, for example. All that to say I deeply resonate with this. I’m SO happy to hear/see this interview. We need social justice issues that shouldn’t be the norm to change (ex: govt granting disability support - in Canada it’s almost impossible to get it even when we qualify). We need disabilities to be understood, especially invisible disabilities (speaking on behalf of myself, my mother who never got an official diagram although my therapist informed me), and of course this entire community. We need to be treated fairly and equally, not “less than” like she says.

[KailuaChick]

I have POTS and have been fairly open about it at work for the past 2.5 years. So far, so good. I know I’m one of the lucky ones but I haven’t noticed any discrimination once I submitted signed paperwork for accommodations. My boss originally pushed me to travel but stopped once I was open with him about how limited I am with my energy. He repeatedly tells me he greatly values my work and that I’d be a great manager. Not saying it’s good for everyone to be open in the workplace but I wanted to share a positive story 😊

[PaperclipProphets]

So glad to find your channel tonight as I struggle with ME/CFS symptoms. My dad was disabled at my age with this illness & I am determined to heal. Thank you for your work! God bless you 🙏

[Fluffcat]

Dear Raelan, thank you very much for this great video! I love what Debra Ruh says!

[dianeeva]

What a great video!! ❤ makes sense! A great perspective.

[ingathomas]

Impressing conversation, thanks a lot. I may say that I called myself almost from the beginning "disabled". I mean when you cannot open a bottle of water or get into a jacket or out of a jumper you certainly are. Thankfully it had no negative connotations to me and I also made fun about it = Me. <3

[KatieBarboza]

Hey Raelan, I have a question for you, does a recovery from CFS mean that you’re just living symptom free ? Or would it mean that you no longer have CFS ?

[maryroberts]

mental health same thing, most men would rather die then admit that disability