Rare Disease Day 2022 - Refsum Disease

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Did you know there are over 300 million people worldwide living with a rare disease? Refsum Disease is one of the 6000+ rare diseases around the world. Global DARE Foundation is participating in #RareDiseaseDay by sharing facts and stories about Refsum Disease to raise awareness to enable earlier diagnosis. Early diagnosis will dramatically improve quality of life. Watch and share this short video to help us raise awareness.

  1. Global DARE Foundation
  2. Adult Refsum Disease
  3. Refsum Disease
  4. Retinitis Pigementosa
  5. Phytanic Acid
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