Rare Disease Day 2022

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. This day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.

This year Rare Disease Day coincides the final day of the Foundation’s inaugural MMN Awareness Month. We celebrated raising awareness for MMN in many ways, and extend our gratitude to all who have participated in bringing attention to this very worth community.