Advanced Cutaneous T-Cell Lymphoma (CTCL)

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The Lymphoma Research Foundation is the nation's largest non-profit organization devoted to funding innovative research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer.

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A family member just passed away because of this. I think Leprosy would be a kinder way to go. Months and months of tumours covering her feet so that she was bedridden. Getting thinner and more frail every month. Tumours covering her body. Face, hands, everything. Needing bandaging of wounds every day. Horrible, horrible, horrible.

jgriffin
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That one that makes you go red, Sezary Syndrome, is a very unpleasant and frequently fatal disorder.A bit of a mystery too as to if it's a further development of Mycosis Fungoides or a separate ailment.

kevanhubbard
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Hi, my mom’s diagnostic is T-Lymphoma with Sezary syndrome. She is treated with Poteligeo. Her skin was flaky but after 2 treatments, the skin looks good, no flaky. BUT, the worse thing is the itching all over the body. No creams help her. What should we try to calm the itching on the skin? It doesn't let her sleep. How can we help her?

mihaelalobontiu