Newly Diagnosed Cutaneous T-Cell Lymphoma (CTCL)

The Lymphoma Research Foundation is the nation's largest non-profit organization devoted to funding innovative research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer.

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[ProfessorMarvel]

Thank you for posting this information. My mother just found out she has CTCL. Trying to remain hopeful.

[Odo]

Very good video. Recently diagnosed here and yes it does take time for a definitive diagnosis. I admit it's been frustrating and scary. Hearing the C word is upsetting. I'm just glad to know what it is and finally have support and treatment. Thank you smart doctors.

[LS-fmzt]

This was an extremely helpful and informative discussion of the disorder. Thank you.

[kristle_virgo-empathic]

Im over this condition. I know it can be worse, and Im very blessed, but Im always in the damn radiation department and now Im talking Bexarotene. I still get tumors. My doctor took me off Nitrogen Mustard. Now Im taking Valchlor topical gel. Itss been 20 years. Any advise?

[kevanhubbard]

I'd guess that it's is mainly discovered once it has become more aggressive as people who have the indolent early phases probably think that they have Eczema or Psoriasis so no biopsies have been done.Doctors don't over diagnose so aren't going to suggest a potentially lethal skin disease like Mycosis Fungoides to someone who has something that resemblances Eczema or Psoriasis.Plus many doctors will never have come across Mycosis Fungoides and the other even rarer T Cell Lymphomas like PCTL NOS, Large Cell Anaplastic, NK Nasal, Sezery Syndrome, etc ..

[egrafix]

Sorry, but the noise in the background is awful and I cannot listen to this.

[angelavaughan]

This is all well and good but our 43 year old son was diagnosed with stage four and Sezary Syndrome; I would like to see a video on his needs.

[godwinmbre]

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