Temporal lobe epilepsy; “deja vu/ auras”

I decided to make a video describing one of the types of seizures that I experience regularly with temporal lobe epilepsy. Feeling a bit crumby so forgive my appearance but DO remember to subscribe! Raising awareness one video at a time 💜💪💜

[ulrikezachmann]

Thank you for sharing. I have a daughter with Temporal Lobe Epilepsy and people keep thinking she has behaviour problems or needs a Psych. Helping me understand how you feel helps a lot. My daughter has disabilities and cannot articulate as well as yourself. Stay brave, you help and support people by sharing.

[colethomson]

I’ve only had these experiences when i was a child, and in my late teens. For me it started with a normal feeling of dejavu, but then very quickly just pulls you into what in that moment feels like real dream memories you’ve had and you remember everything about it. Then boom, it’s gone, and you just feel like you came back from a different plane of existence

[D-Rviv]

I get deja-vu. A smell. A feeling like I’m falling. And a perception of looking at myself from above.


All at the same time.

[opalescentmica]

I appreciate the way you tell it as being "injected into a dream" and the "story set up" is a perfect description. Unknowing I had epilepsy, when I was younger I'd describe it "I'm going back into an old forgotten dream, I've been here before, but it was in a dream". I called them flashbacks. Thank you for sharing, April!

[ambermonterosso]

I feel like crying. This is exactly what I’ve been experiencing.

[callumsullyfitness]

"injected into a dream" is perhaps the best analogy to describe an aura that I have read 👍

[gumpergumper]

I just forwarded your video to my wife to let her know what it feels like for me because your description is the best I’ve heard. I’ve learned to sit down immediately. I have also found if I’m dehydrated and or lack of sleep they are more likely to occur. Good luck young lady.

[JodellBells]

I've been getting these since I was a child. Never knew what it was, called it "Deja Vu's". My parents didn't really believe me when I explained it to them! Feel so much relief hearing I'm not alone!

[elizabethrhodes]

It's unfortunately very common for people to suffer with these deja vu auras for years before they're finally diagnosed with temporal lobe epilepsy (TLE)). Part of the reason is because people generally think epilepsy is just the dramatic fall-to-the-ground and shake kind of thing. They don't realize that there are many other types, too. And like in April's case, many of them don't cause unconsciousness. Thank you, April, for explaining what deja vu auras feel like. I also have TLE, but my auras present as waves of intense nausea and sweating lasting several minutes. I was misdiagnosed at first. Finally I saw a neurologist who tested me and put me on epilepsy meds. After trial and error with several epilepsy meds, my seizures are under control. I wish the same for you.

[jetermanny]

Omg you are literally the 1st person who was ever able to explain what happens to me!! Mine sometimes wake me up in the middle of the night and are super scary. Sometimes they happen in the middle of the day and I try to tell people what it feels like and they look at me like I'm nuts. To me it feels like DeJa vu mixed with remembering my dreams and they're usually the scariest dream ever I'm remembering and it feels like I'm in actual hell. I always say "I wouldn't wish this on my worst enemy." I also get visual auras where its like there's a ripple in my vision. Usually that goes away only if I go in a dark room for like a half hour with silence like a migraine. Super scary and I'm sorry you go through the deja vu part too.

[barryboudini]

FINALLY!! Somebody describing exactly how I feel.

[auntiegarfunkel]

I actually understood and related to every word, its refreshing to hear it from another person and be reminded that I'm not going crazy

[jillybeancadney]

"Its hard to describe a world that doesnt exist". Yes!!! Im here trying to find ways to describe what im going thru. As the aura happens and i know its gonna happen, i go, "Its HAPPENING!!" Over and over until it ends. Im covered in goosebumps and my face and cheeks get goosebumps too. Im on Levitracitam. I feel ya girl. You described it well actually. People who dont know what it feels like, you cant describe it to them. Its like trying to describe the beauty of seeing something truly majestic out in the world. You cant. Theyll never know the feeling unless they have seen it witnessed it personally. Its wild. I feel crazy trying to describe it sometimes. I hear ya girl.

[jazuzzle]

i suddenly get deja vu and a sudden roller coaster feeling that makes me feel nauseous and hot for a minute. while it happens i kinda stop in my tracks. the tiles on my floor and sometimes the lighting in the room or the smell might trigger me. it feels like im put into a dream (but i cant even remember when i had the dream or if i even had it). it goes away after 2 minutes at the most but after i have it i try thinking about what actually happened and i cant describe it to anyone. the 2 worst parts are the nausea and the fact that i feel i cant really go to the doctor and get a proper treatment if the doctor is incompetent and that itll get worse and i lose my memory and stuff

[jessejames]

wow... the first time ive heard it described by someone other than me as "being injected into a dream that was already set up"... thank you im sharing this with my family to help give them context.

[CtrlAltDestroy]

I've been trying to find answers for what's going on with me. I get deja vu, accompanied with anxiety, impending doom, and the feeling I am going to die soon. Really sucks ngl

[TruDis]

I've often thought of it as stepping into the body of an alternate version of myself who lives in an underlying, coexisting reality.. A much darker, almost hell-like reality that is always there and always _has_ been there.

[Jfli]

Thank you! The power of testimony transcends this plane. You have no idea how many lives you’ve set on the correct course. Your bravery is admirable.

[Jaybird]

I have these exact same seizures. 20 years now. It’s awesome to know others understand the same experiences.

[JukkaPollanen]

I feel very much for you...Thank you for sharing.