Rare Disease Day Official Video 2022

Rare Disease Day 2022 shines a light on the global and diverse community of over 300 million people living with a rare disease and their families.

By telling the stories of real people all around the world who are living with a rare disease, this video hopes to show that while each rare disease is rare, as a community we share a lot.

Every year this global, patient-led awareness campaign brings together millions worldwide in solidarity with the rare disease community. In 2021, thousands of events took place in over 100 countries, mobilising people living with a rare disease and their families, healthcare professionals, policy and decision makers, and industry and company representatives. We hope that this will grow even more in 2022!

This video is translated in over 40 languages and disseminated globally by the 67 National Alliance patient organisation partners of Rare Disease Day.

Share it today!

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#RareDiseaseDay is organised by EURORDIS-Rare Diseases Europe and 67 National alliance partners.

We would like to thank all of this year’s rare disease heroes for their participation in the campaign: Nada, Vasco, Tsepiso Gloria, Wafic, Jelena and Taka.

[emilypurdin]

Emily from Portland Oregon. I have Cushing's Disease. Keep going everyone and enjoy the good days.

[barryaanhuizen]

dgreeatimg from CapE town, awesome to be part of tis inniative

[rashakaffasce]

Greetings from Egypt..so happy there is an Arabic language contribution In the video..best community ever

[fabirox]

Greetings from California, USA 🙏 Praying for all who have a rare disease like our son does. There is always hope :)

[alanmaladiesraresluxembour]

🙌 Greetings from Luxembourg! Together we are stronger !! 💪

[marcomarziali]

Greetings from Rome, I was diagnosed with Beçhet Syndrome in July 2001. A big hug to everybody!

[EdwardForshaw]

Hello from Surrey, United Kingdom. Last year I was diagnosed with spinocerebellar ataxia. I'm coping with it, but I want to join you all in shouting about our rare diseases! Awareness is key. Best wishes to you all 👍

[nailyfadillah]

Prefer all the different colours presented to all those beatiful human with spesial conditions, than the people with any sexual interest. Best wishes and hopes for strong human.

[tudormiller]

I'm an adult with Tyrosinemia Type 2 watching from London.

[katheufelistus]

Hello..Am from kenya diagnosed with generalised Myasthenia Gravis from 2014

[mme.irenekilumanga]

Greetings, I’m Tanzanian diagnosed with systemic lupus erythematosus & lupus nephritis since 2007… Together WE STAND & fight these rare, incurable and debilitating illnesses 🙏🏾💜

[declandelaney]

Greetings from Merseyside, England, I was diagnosed with autoimmune hepatitis in September 2020. Doing fine. Best wishes to you wherever you are

[madhav]

Greetings from India, Diagnosed with Vitiligo, thank you for such a great support from Family and friends . Together we can overcome ❤️🤩

[JeanHF]

Greetings from the UK. I have been diagnosed with Charcot Marie Tooth Disease. It took them 9 years to diagnose. There is no treatment or cure. I am hopeful for the future.

[catherinesargefield]

Hello from Canada. I have Turner Syndrome and my wife has Elhers Danlos Syndrome

[lindakaempf]

I was diagnosed with Behcets Syndrome.

[DangerousEdge]

Hello from Upstate New York (southern Adirondack / northern Capital District region). I live with double seronegative Myasthenia Gravis (via clearly abnormal SFEMG including blocked pairs) and Ehlers-Danlos Syndrome (unspecified, hypermobility)

[martapedroso]

Se precisar de uma fala Brasileira estou aqui, sou uma das pessoas com doenças raras no Brasil. Amei o vídeo. O espanhol deu pra entender. 👏 "juntos poderemos pintar a imagem de um mundo mais brilhante" e mais forte.

[agneseesposito]

Ciao...Come si può avere tradotto in italiano?