Rare Disease Day 2014 Official Video

Watch and share the official Rare Disease Day 2014 video!
The seventh Rare Disease Day takes place on 28 February 2014.
This year's video demonstrates the 2014 theme "CARE" showing the many facets of caring for people living with a rare disease and their families.
"Join Together for Better Care" and participate!
Join an activity taking place near you to demonstrate global solidarity.
Show your solidarity today!

[KatrinaKatMoody]

Great video to mark Rare Disease Day 2014 - we'll be sharing more and participating in honor of all the families living with Axenfeld-Rieger Syndrome. 

[myositissupport]

Thank you for all of your hard work on behalf of all of us suffering from rare diseases such as #myositis We are thankful for all of the hard work you and do to help make our diseases more known and fighting for research, funding and policy.  You are appreciated!

[artistichobo]

Seriously why one earth would someone dislike this video? Don't they understand how hard it is for people with rare diseases? There is not one thing about this video to dislike....I seriously hope it was just a mistake on their part cause if not...they may be missing their heart.

[lydiaapple]

shared on my sons page, he has Mowat-wilson syndrome. only around 200 cases in the world <3 my rare boy x

[jchilner]

Thank you for this video that allows us to share, and hopefully educate others with the rare diseases we each carry, that can be "invisible" to others. My father, an aunt, and an uncle, myself, and two of three children have Charcot Marie Tooth disease. My daughter and I also carry Ehlers Danlos type 3 or AKA Hypermobility Syndrome. While EDS 3 is supposed to be inherited, I am the first on both sides of my family to have it, and my daughter will be the second. It is a literal war on the inside as every muscle, joint, and the peripheral nerve are dying. Life is never easy with mobility, but I choose to remain positive. I only hope that a cure can be found for us all, but mostly for our children who inherit these rare diseases. My children having the physical ability to keep up with running, jumping, and even more with their friends, is something I would love to see. Let's keep awareness going, regardless of your diagnosis, or the place/country you live in. It is our voices that are needed to be heard and we can't do that if we are not actively involved in raising awareness ourselves. Who better to do so than the person having the rare disease?

[kirapetersen]

I have a rare blood disease called paroxysmal nocturnal hemoglobinuria (PNH)

[Lucindaara]

I couldn't see Idiopathic Intracranial Hypertension :(